CAC2 Childhood Cancer Community News Digest (May 5-11)

May 12, 2025 Community News, Guest Blogs, News Digest

Assorted News from the Last Week:

If you weren’t able to join us for the “Know Before You Go” drop-in session for CAC2 Members, it isn’t too late to catch up on all the action.

The National Comprehensive Cancer Network (NCCN) has updated its guidelines to include the category 2A recommendation of a naxitamab-gqgk (Danyelza)-based regimen for adult and pediatric patients with high-risk neuroblastoma.

A new government study provides the most complete picture yet of early-onset cancers, finding that the largest increases are in breast, colorectal, kidney and uterine cancers. Scientists from the National Cancer Institute looked at data that included more than 2 million cancers diagnosed in people 15 to 49 years old between 2010 and 2019.

An attempt to evaluate the use of mixed reality technology in surgically treated pediatric oncology patients.

Medulloblastomas are thought to develop between the first trimester of pregnancy and the end of the first year of life. Researchers have now analyzed the genetic changes of each individual cancer cell in tumor samples to reconstruct which genetic changes occur first during tumor development and when they occur.

In March, President Trump honored a Texas boy diagnosed with brain cancer and vowed to drive down childhood cancer rates through the”Make America Healthy Again (MAHA)” initiative, but some administrative initiatives point the other direction.

El Salvador: Progress in access to childhood cancer medicines

Children’s cancer risk from gas stoves nearly double that of adults

Dosage optimization of pediatric oncology products: Our patients deserve better (gated)

 

Upcoming Webinars, Online Opportunities, and Meetings:

 

The Childhood Cancer Data Initiative (CCDI) will host a webinar on the NCI-funded Pediatric Preclinical In Vivo Testing (PIVOT) program, featuring experts Malcolm A. Smith, M.D., Ph.D., and Carol J. Bult, Ph.D. on May 13 at 1:00 ET.  Click here for more information and to register.

Hepatoblastoma- A Parent and Nurse Perspective, a free virtual webinar in honor of Hepatoblastoma Awareness Day will air on Friday, May 23rd, 2025 at noon ET.  Click here for more information and to register.

10th Annual Mark Hill Memorial Golf Outing on June 6th at White Hawk Country Club benefitting Northwest Indiana Cancer Kids Foundation on June 6 in Crown Point, IN.  Click here for more information and to register.

The Coalition Against Childhood Cancer will hold its 2025 Annual Summit, hosted by Children’s National Hospital in Washington DC and presented by Day One Biopharmaceuticals. This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing efforts of our members who are working for a future without childhood cancers.  June 15-17.  Register here: CAC2 Annual Summit Registration

MIB Agents FACTOR Osteosarcoma Conference brings together the leading osteosarcoma researchers, clinicians, patient families, osteosarcoma survivors, patients, and bereaved parents to Make it Better (MIB) for those battling this disease. The conference is is Salt Lake City, UT on June 26 – 28 2025.  Click here for more information and to register.

Past Recordings:

Some of the top figures in sports are raising awareness and much needed money to fight pediatric cancer at the Dick Vitale Gala.

CAC2’s April pop-up webinar, “Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding”

Take Action:

The Canadian Cancer Research Alliance is now accepting abstract submissions for the 2025 Canadian Cancer Research Conference, which will be held exclusively in person in Calgary from November 2 to 4, 2025.

CAC2 Innovation Council Recommendation: My Dragonfly Friend

 

The Requester: Marie Kriedman, author of the book My Dragonfly Friend

Overview of the Opportunity:  “My Dragonfly Friend” is a resource for families of children with cancer that is being used in children’s hospitals.

The Type of Request: Information sharing about a book for purchase that supports children with cancer and other children in the child’s family and community.

The Ask:  Inform CAC2 Members about the book, My Dragonfly Friend that encourages children of all ages (in any stage of cancer treatment), and reminds them of their strength, bravery, and love surrounding them on their journey. When a child is in crisis, the entire family is affected, and the author would like to help children have a small bit of comfort during a stressful time.

Supporting Documentation:

From the author:

This high-quality children’s book offers educational information and resources. It tackles a tough subject, without talking down to the child, and inspires hope. Thoughtful and colorful illustrations compliment the book’s theme of strength and love. My Dragonfly Friend covers 10 cancers and various levels of treatment, from diagnosis to post treatment.

I always say that, “A small amount of help is a huge help when a person is feeling overwhelmed.” A cancer diagnosis for a child is clearly overwhelming, as well as a new and scary situation. I hope you will consider purchasing some books to have on hand for families and add it as a resource for anyone who needs help. 10% of all sales will be donated to the Dragonfly Foundation.

You can read a description of each of my books (and reviews) at BooksbyMarie.com.

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