CAC2 Childhood Cancer Community News Digest (May 12-18)

May 19, 2025 Community News, News Digest

Assorted News from the Last Week:

In CAC2’s May webinar, “Fertility Hope for Childhood Cancer Survivors” our speakers explored fertility preservation and future family building options for childhood cancer patients and survivors.

Childhood cancer survivors at increased risk of  chronic kidney disease and hypertension, this matched cohort study followed patients for up to 27 years.

Study reveals targetable mechanism behind high-risk predisposition gene in pediatric medulloblastoma.

The FDA approved the first oral therapy for rare adrenal gland tumors and includes children 12 years and older.

Epigenetics predicts the aggressiveness of Burkitt lymphoma, a common pediatric tumor in developing countries.

As the rate of some cancers increase in younger people, researchers search for answers.

Evaluation of biomarkers for intestinal damage in pediatric acute lymphoblastic leukemia.

Houstonians Nancy and Richard Kinder pledged $150 million through their Kinder Foundation to launch the Kinder Children’s Cancer Center, that will be jointly run by Texas Children’s Hospital and MD Anderson.

Upcoming Webinars, Online Opportunities, and Meetings:

 

Hepatoblastoma- A Parent and Nurse Perspective, a free virtual webinar in honor of Hepatoblastoma Awareness Day will air on Friday, May 23rd, 2025 at noon ET.  Click here for more information and to register.

10th Annual Mark Hill Memorial Golf Outing on June 6th at White Hawk Country Club benefitting Northwest Indiana Cancer Kids Foundation on June 6 in Crown Point, IN.  Click here for more information and to register.

The Coalition Against Childhood Cancer will hold its 2025 Annual Summit, hosted by Children’s National Hospital in Washington DC and presented by Day One Biopharmaceuticals. This annual event reflects the CAC2 values and mission by providing top-notch educational programming, designing multiple opportunities for members to connect and engage, and showcasing the ongoing efforts of our members who are working for a future without childhood cancers.  June 15-17.  Register here: CAC2 Annual Summit Registration

MIB Agents FACTOR Osteosarcoma Conference brings together the leading osteosarcoma researchers, clinicians, patient families, osteosarcoma survivors, patients, and bereaved parents to Make it Better (MIB) for those battling this disease. The conference is is Salt Lake City, UT on June 26 – 28 2025.  Click here for more information and to register.

Past Recordings:

If you weren’t able to join us for the “Know Before You Go” drop-in session for CAC2 Members, it isn’t too late to catch up on all the action.

CAC2’s April pop-up webinar, “Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding”

Take Action:

At CAC2 we are focused on children with cancer, but the issues impacting them are wide ranging and often far bigger than what the childhood cancer community can accomplish on their own.  We align with others— sometimes leading the charge, sometimes following and supporting their efforts. The following post is a Call to Action from the Haystack Project: The Voices of Rare and Ultra Rare (https://haystackproject.org) concerning possible Medicaid cuts: https://www.cac2.org/guest-blog-save-medicaid-materials-to-share-with-your-communities/.

 

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