When a child is diagnosed, the primary goal is to get them to survive their cancer.
The number of childhood cancer survivors has increased as treatment options have advanced. However, survivors often bear the burden of their treatments and may not live better, higher quality lives due to the lifelong effects of childhood cancer.
They may contend with a range of late effects, some arising from their cancer and some a result of the brutal, toxic treatments that saved their lives. These capricious late effects can develop within months after treatment ends or decades later, well into adulthood.
As a result, survivors face physical and psychosocial challenges that lead to educational, financial, legal, employment, medical care, and health insurance challenges throughout their lives. Furthermore, childhood cancer survivors and their families often feel isolated, alone, forgotten, and frustrated by a lack of support.
The Survivorship Interest Group was founded and charged to address the myriad of challenges that childhood cancer survivors (ages 0-19), their caregivers, and their families face. We do this through our various projects and initiatives. We hope to ease the burden for survivors and their families by providing simple access to the information and assistance they need. We also hope that nonprofit organizations, medical professionals, and other CAC2 members will use our projects to incorporate survivorship into their organizations and institutions, which will further help childhood cancer survivors and their families.
If you have any questions or would like to become involved with the Survivorship Interest Group, please contact: survivorship@cac2.org.
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