One of the primary ways that CAC2 supports the childhood cancer community is by identifying and advancing projects that individual organizations cannot easily or effectively pursue on their own. The CAC2 Project Incubator and Accelerator enables this work by inviting CAC2 members to propose collaborative projects that align with CAC2’s mission to foster and sustain deeper collaboration, information exchange, and shared learning across the childhood cancer community spanning advocacy & awareness, research & treatment, family support and survivorship.
CAC2’s Project Incubator process provides the support of experienced volunteers to help guide members who have great ideas through the process of refining their ideas, presenting the concept to the full membership for endorsement, and support for engaging the greater community in the execution of the project.
A comprehensive, well-documented and trusted source of information for anyone seeking data and statistics related to pediatric cancers. The Fact Library team updates its listing annually so that it can continue to be instrumental in building awareness of the realities associated with diagnosis, treatment, remission, and survivorship. Visit the Fact Library.
An online resource that lists events, programs, gold lighting initiatives, and engagement opportunities for individuals to get more involved in activities happening in their own neighborhoods and across the nation. The calendar is searchable by date and by location, creating an easy-to-use database for everyone to join an opportunity to make a difference. View the Map/Calendar and add your event.
The Ethics Think Tank team developed and presented a white paper that identifies the potential ethical issues non-profits face when funding research and the Best Management Practices (BMPs) organizations use in dealing with those issues. During the next phase of the project, the team will draw on extant resources and develop new resources to assist non-profit research funders as they strive to support drug development in pediatric cancer ethically. Learn More about the Ethics Think Tank.
Foundation Match is a project whose team is building a searchable web platform for CAC2 member organizations with like-minded missions to connect, collaborate, and fund research and other projects with a goal of preventing duplication of effort and creating a more coordinated funding effort to support research. Learn More About Foundation Match. Supported by Focused Ultrasound Foundation.
The Gold Awareness Project offers numerous creative ways to promote powerful messages and gold icons in September to increase awareness of childhood cancer. Through this project, CAC2 hopes to inspire action and engagement locally, nationally, and globally.
The Childhood Cancer Hub is home to two curated, community-driven directories of organizations: the Hope Portal and Better Together. The Hope Portal displays non-profit organizations that help children and teens with cancer and their families during treatment, while Better Together lists organizations that offer survivorship resources.
The Hope Portal provides access to a robust list of organizations in the United States and Canada that provide resources and assistance to children with cancer, survivors, and their families. Our updated listing provides filters for bereaved families and for families looking for sibling support. Supported by Day One Biopharmaceuticals.
Better Together focuses on organizations that provide support for survivors of childhoodand AYA cancer. By shining the light on the challenges and needs of these survivors, it can help address the frustration, loneliness, and isolation that survivors and their families often feel. Survivors can use this service regardless of their age, diagnosis, location in the U.S., or length of time since their final treatment. Supported by the Neuroblastoma Children's Cancer Society.
The ICRP is a unique global alliance that gathers and shares cancer research funding data to enhance collaboration and strategic coordination between individual researchers and organizations. ICRP member organizations and agencies (such as CAC2) share high-quality, coded data via the ICRP database, which contains data on more than 80,000 grants from more than 81 institutes and organizations, totaling over $15 billion in cancer research. Access to the ICRP is a benefit of CAC2 membership. CAC2 involvement has bolstered inclusion of pediatric cancer research funding and reporting in the database.
Recommended and endorsed as an early project by founding CAC2 members, this effort has evolved into a national initiative comprised of an annual family-friendly weekend each September that features a public rally, a candlelight vigil, a walk, games, activities, and live entertainment in Washington, D.C. This effort brings together the general public, elected officials, civic leaders, the medical community and childhood cancer community- fighter, survivors and bereaved family members to unite against childhood cancer, with the goal to advance the childhood cancer cause by uniting our voices.
In the fall of 2016, CAC2 hosted “From Bench to Bedside and Beyond,” an interdisciplinary research conference for childhood cancer at Cold Spring Harbor Laboratory. Stakeholders from across the spectrum met to examine and discuss emerging technologies and the clinical pipeline to identify barriers to progress for childhood cancer research. The two-day conference featured 18 speakers and more than 150 family members, funders, regulatory agencies, industry representatives, medical professionals, and investigators took part. Attendees experienced an inspiring exchange of knowledge and networking, forged new relationships, and made connections in a truly engaging meeting. An extensive conference proceedings document remains available for everyone to benefit from this experience.
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