CAC2 Childhood Cancer Community News Digest (June 2-8)

June 9, 2025
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Assorted News from the Last Week: The Global Initiative for Childhood Cancer aims for a two-thirds remission rate by 2030, saving the lives of approximately one million children worldwide. U.S. Food and Drug Administration approves Immix Biopharma pare pediatric disease designation for IMX-110 as a treatment for life-threatening pediatric cancer in children Obesity linked to subsequent neoplasms in childhood cancer survivors. Virginia Tech researchers are developing more precise treatments for pediatric brain cancer using a new class of therapies that target cancer cells while sparing healthy tissue. The Nepal Childhood Cancer Alliance (NCCA) marked International Cancer Survivor Day by launching [...] Read more

CAC2 Webinar–“Beyond the Signature: Demystifying Informed Consent in Childhood Cancer”

June 5, 2025
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In CAC2's June webinar, "Beyond the Signature: Demystifying Informed Consent in Childhood Cancer," we brought together an extraordinary panel of experts, including a clinical ethicist, a pediatric oncologist, and a parent advocate, who each offered unique and deeply informed perspectives on how we can make this informed consent process more ethical, transparent, and truly family-centered. Informed consent is more than just a signature on a form.  It is a vital process that ensures families understand, trust, and feel empowered in the face of one of the hardest decisions they may ever make: enrolling their child in a clinical trial. In [...] Read more

CAC2 Childhood Cancer Community News Digest (May 26-June 1)

June 2, 2025
Community News, News Digest No comments yet
Assorted News from the Last Week: Children and young people are waiting longer than necessary for cancer diagnosis, according to new research. Disruptions to school, work and personal milestones are only some of the disruptions that adolescent and young adult (AYA) patients with lymphoma uniquely face following their diagnosis, creating a need for individualized care which would take emotional and psychosocial needs into consideration. Pediatric cancer patients and their caregivers largely prefer to access test results immediately through the patient portal rather than wait to hear about results from oncologists. Two Wilms tumor articles: It remains unclear why some paediatric [...] Read more

Guest Blog–SAVE MEDICAID (SENATE): Materials to Share with your Communities

June 2, 2025
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At CAC2 we are focused on children with cancer, but the issues impacting them are wide ranging and often far bigger than what the childhood cancer community can accomplish on their own.  We align with others— sometimes leading the charge, sometimes following and supporting their efforts. The following post is an updated Call to Action from the Haystack Project: The Voices of Rare and Ultra Rare (https://haystackproject.org). Shared with permission from and thanks to the Haystack Project We know many rare disease families rely on Medicaid as a primary or secondary insurance provider. Medicaid as you know it and rely […]

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CAC2 Childhood Cancer Community News Digest (May 19-25)

May 26, 2025
Community News, News Digest No comments yet
Assorted News from the Last Week: The National Cancer Institute reports that about 85 percent of children diagnosed with cancer are alive five years after diagnosis. That news is encouraging, but long-term survivor care brings its own challenges. Research on children diagnosed with acute lymphoblastic leukemia (ALL) shows that the longer a patient’s body mass index (BMI) falls within the overweight/obese category during treatment, the greater the risk of relapse and the lower the chance of survival. Influence of genetic biomarkers on cardiac diseases in childhood cancer survivors: a systematic review The FDA has granted regenerative medicine advance therapy (RMAT) [...] Read more

CAC2 Childhood Cancer Community News Digest (May 12-18)

May 19, 2025
Community News, News Digest No comments yet
Assorted News from the Last Week: In CAC2’s May webinar, “Fertility Hope for Childhood Cancer Survivors” our speakers explored fertility preservation and future family building options for childhood cancer patients and survivors. Childhood cancer survivors at increased risk of  chronic kidney disease and hypertension, this matched cohort study followed patients for up to 27 years. Study reveals targetable mechanism behind high-risk predisposition gene in pediatric medulloblastoma. The FDA approved the first oral therapy for rare adrenal gland tumors and includes children 12 years and older. Epigenetics predicts the aggressiveness of Burkitt lymphoma, a common pediatric tumor in developing countries. As [...] Read more

Guest Blog–SAVE MEDICAID: Materials to Share with your Communities

May 19, 2025
Blog Posts No comments yet

At CAC2 we are focused on children with cancer, but the issues impacting them are wide ranging and often far bigger than what the childhood cancer community can accomplish on their own.  We align with others— sometimes leading the charge, sometimes following and supporting their efforts. The following post is a Call to Action from the Haystack Project: The Voices of Rare and Ultra Rare (https://haystackproject.org). Shared with permission from and thanks to the Haystack Project We know many rare disease families rely on Medicaid as a primary or secondary insurance provider. Medicaid as you know it and rely on […]

Read more

CAC2 Webinar–“Fertility Hope for Childhood Cancer Survivors”

May 19, 2025
Blog Posts, Webinars No comments yet
In CAC2's May webinar, "Fertility Hope for Childhood Cancer Survivors" our speakers explored fertility preservation and future family building options for childhood cancer patients and survivors. Dr. Leena Nahata (Nationwide Children’s Hospital) spoke first and covered a range of topics including How and when to have fertility preservation conversations Risk stratification overview Ovarian tissue cryopreservation Testicular tissue cryopreservation Egg and sperm banking Long term storage Megan Scherer (Worth the Wait) and CAC2 Member Nick Giallourakis (Elephants and Tea) followed and provided real world stories concerning helping survivors with fertility preservation and family building, the importance of providing stories of hope [...] Read more

CAC2 Childhood Cancer Community News Digest (May 5-11)

May 12, 2025
Community News, News Digest No comments yet
Assorted News from the Last Week: If you weren’t able to join us for the “Know Before You Go” drop-in session for CAC2 Members, it isn’t too late to catch up on all the action. The National Comprehensive Cancer Network (NCCN) has updated its guidelines to include the category 2A recommendation of a naxitamab-gqgk (Danyelza)-based regimen for adult and pediatric patients with high-risk neuroblastoma. A new government study provides the most complete picture yet of early-onset cancers, finding that the largest increases are in breast, colorectal, kidney and uterine cancers. Scientists from the National Cancer Institute looked at data that included [...] Read more

CAC2 Drop-In Session–“Know Before You Go, Preparing to Attend the CAC2 Summit in June”

May 9, 2025
Blog Posts, CAC2 News, Community News, Explainer Post No comments yet
If you weren't able to join us for the "Know Before You Go" drop-in session for CAC2 Members it isn't too late to catch up on all the action.  We held this session to help who have already registered for the CAC2 Summit in Washington DC this June prepare for the upcoming CAC2 Summit. We covered everything you need to feel informed, empowered, and ready to make the most of your summit experience. Watch the recording below and review the slide deck where we walked through the highlights and shared engagement tips to ensure a meaningful event for all. VIDEO RECORDING [...] Read more
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