CAC2 Childhood Cancer Community News Digest (April 22-28)

Assorted News from the Last Week:

Congratulations to CAC2 Supporting Organization Day One Biopharmaceuticals.  The FDA has granted accelerated approval to tovorafenib (Ojemda) for the treatment of pediatric patients 6 months of age and older with relapsed or refractory low-grade glioma harboring a BRAF fusion or rearrangement, or a BRAF V600 mutation and marks the first systemic therapy indicated for pediatric patients with low-grade glioma harboring BRAF rearrangements, including fusions.  There are a ton of articles about this approval.  This OncLive piece was the first in.

The FDA approved lutetium Lu 177 dotatate for the treatment of pediatric patients aged 12 years and older with somatostatin receptor-positive gastroenteropancreatic neuroendocrine tumors, including foregut, midgut and hindgut tumors.

Blog post from CAC2 Student Member Joshua Omale: “Embracing Resilience: Navigating Childhood Cancer Advocacy in Nigeria.”

Improvements in diagnostic and treatment approaches have increased survival rates for pediatric cancers and as such, more children and families are navigating the reintegration process after survival.  Study finds that these parents and children experience major challenges reintegrating to work and school after surviving childhood cancer.

An exploration of the ethical, legal, and societal dimensions of pediatric biobanking with biospecimen tracking and management software.

Ancestry changes genetic risk variants’ impact on type 2 diabetes in childhood cancer survivors & alkylating agent exposure magnifies diabetes risk.

CAC2 Member CancerFree KIDS, a trailblazing nonprofit organization dedicated to funding pediatric cancer research, announced today that its research investments of nearly $10 million since 2002 have received more than $100 million in follow-on funding, totaling over $114 million to continue studies dedicated to finding better treatments for pediatric cancer.

Upcoming Webinars, Online Opportunities, and Meetings:

Join MIB Agents in Making It Better through TURBO, the Tumor Review Board for Osteosarcoma on May 8 from 5:00-6:00 pm ET. This virtual opportunity is designed to foster collaboration and knowledge-sharing among multidisciplinary experts globally. For information and to register.

Join Rebecca Katz, culinary innovator, and Natalie Crittendon, Occupational Therapist, for a discussion on all things nutrition as relates to illness on May 31, from 1:00-2:00 ET.  For information and to register.

Register for the Making It Better at the 7th Annual FACTOR Conference in June 20-22, 2024—an intimate gathering shaping the future of osteosarcoma care. Connect with more than 60 dedicated doctors and researchers, resilient patients and families, and insightful scientific panels in thoughtful discussions, shared experiences, with a touch of fun.  For information and to register.

The 21st International Symposium on Pediatric Neuro-Oncology (ISPNO 2024) from June 29 – July 2, 2024, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) from June 28-29, 2024, which will take place in Philadelphia, PA.  For information and to register.

56th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.

Take Action:

CAC2 is a member of Childhood Cancer International (CCI). They have begun a global awareness campaign to create a childhood cancer alphabet.  To join this campaign click this link and share with words that reflect your experience with childhood cancer in your own language, beginning with each letter of the alphabet. Together, in collaboration, we are strengthening our childhood cancer village. Your voice and that of your community are important!

Participants wanted in this University of Birmingham study: Informing the design of a Home-based Online Pain-management Support System (HOPSS) for parents and children with cancer-related pain

The Facebook group ArtVsCancer has hundreds of artists, who create free custom art for children with a life-threatening illness. We have helped many individual patients and are collaborating with Kristen King, the Manager of Child Life at Memorial Health Dwaine & Cynthia Willett Children’s Hospital of Savannah.  For information and to learn more check out the link to some of the children and their custom art

CAC2 Member Cancer Help Desk provides expert cancer navigation to anyone from anywhere.


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