CAC2 Childhood Cancer Community News Digest (June 17-23)
Assorted News from the Last Week:
CAC2 Supporting Organization Member Day One Biopharmaceuticals announced it has entered into an exclusive licensing agreement with MabCare Therapeutics for MTX-13, a novel antibody drug conjugate (ADC) targeting protein-tyrosine kinase 7 (PTK7) which is overexpressed in in neuroblastoma, rhabdomyosarcoma and osteosarcoma in children, as well as esophageal, ovarian, lung and endometrial cancers among adults.
According to a Swedish study collecting data since 1958, “If you’ve had cancer as a child or adolescent, you have an increased risk of almost all diagnoses in the future.”
‘Vigilant surveillance’ detects asymptomatic tumors in children predisposed to cancer.
Upcoming Webinars, Online Opportunities, and Meetings:
Lori Krause will lead Healing Hearts Wellness Workshops Wednesday from 7- 8PM ET June 26. Participants will learn techniques to better manage stress and moods and learn new practices to stay healthy, embrace new experiences and thrive while living with loss and grief. For information and to register.
Triage Cancer is presenting a webinar for caregivers on June 27, 2024 at 1:00 ET. Learn about the rights of caregivers at work, how to replace lost wages while acting as a caregiver, and practical tips to support caregivers. We’ll also talk about community resources available to caregivers. For information and to register.
The 21st International Symposium on Pediatric Neuro-Oncology (ISPNO 2024) from June 29 – July 2, 2024, and the Annual Meeting of the Brain Tumor Group of SIOP Europe (SIOPE-BTG) from June 28-29, 2024, which will take place in Philadelphia, PA. For information and to register.
56th Congress of the International Society of Paediatric Oncology (SIOP 2024), which will take place in Honolulu, Hawaii, USA | October 17-20, 2024. Registration is open and anyone who registers before July 17, 2024 can take advantage of the discounted rates.
U.S. Senators Bob Casey (D-PA) and Markwayne Mullin (R-OK), introduced the Creating Hope Reauthorization Act to ensure that pharmaceutical companies continue to develop drugs to treat rare diseases affecting children, including types of cancer. The bipartisan legislation would extend the Food and Drug Administration’s (FDA) Rare Pediatric Disease Priority Review Voucher (PRV) program, which incentivizes drugmakers to create these novel treatments by bringing them on the market on an expedited timeline.
Past Recordings
CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):
- Individual CAC2 Members Ann Ramer and Bobbi Krabill
Take Action:
CAC2 Member the Children’s Cancer Cause announced that the organization is accepting applications for its 2024 Survivorship Champion’s Prize. This $10,000 annual award is presented to a group, program or institution making significant advances in programs and services to provide life-long health maintenance for survivors of pediatric cancers.
CAC2 Student Member Na Ouyang, MSN, RN (PhD candidate, Yale School of Nursing) is conducting her dissertation study, which focuses on exploring how clinician-parent communication influences parents’ preparation for their child’s end-of-life and then impacts parental grief in early bereavement. Click here for information and details. Click here for the IRB Approval document.
CAC2 Innovation Council Recommendation: ArtVsCancer
Overview of the Opportunity: ArtVsCancer is a public Facebook group where AI artists create free custom art for childhood cancer patients and other children with life threatening diseases.
The Requester: Arthur van Vugt, Dutch childhood psychologist
The Type of Request: Information Sharing
The Ask: Inform parents about the existence of the group
Supporting Documentation:
- Facebook Group: https://www.facebook.com/groups/artvscancer/announcements
- Summary of Program: https://drive.google.com/file/d/1FmWKFhkoobZwpqcK9W4W95usuRHmqSHZ/view?usp=share_link
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