Closing the Gaps: Federal Legislation and State Leads for Childhood Cancer Advocacy

Date

Dec 17 2025

Time

Eastern Standard Time
12:00 pm - 1:00 pm

Location

CAC2 Webinar
Philadelphia, PA

This CAC2 webinar will begin by providing an overview of Federal advocacy priorities, current engagement opportunities around the federal legislation Give Kids a Chance Act and the Accelerating Kids’ Access to Care Act, and information about Alliance Action Days in February.  It will also include a strong explanation of CAC2’s State Advocacy Vision.

WEBINAR OUTLINE

Welcome (Speaker: Misha Mehta)

  • Activate advocates around two federal bills before the January CR.
  • Recruit and build the state advocacy network for 2026.

Federal Advocacy and Alliance Action Days – February 2026 (Speakers: Michael Henry and Ann Ramer)

Overview of Priority Federal Bills

  • Give Kids a Chance Act
     Purpose, urgency, current momentum
     Surge in recent constituent messages and new Senate co-sponsors
  • Accelerating Kids’ Access to Care Act
     Why it matters for families
     Current status and what’s needed before year-end

Calls to Action

  • SoftEdge alerts (single link for both bills)
  • Letter-writing campaign (Nancy Goodman’s teams)
  • Identify remaining priority state and
  • Encourage advocates in unrepresented states to mobilize

Overview of Action Days

  • What Action Days are
  • Why early planning matters
  • What advocates can expect if they attend
  • How CAC2 will support participants

State Advocacy Building (Speakers: Annette Parker and Ginny McLean)

Why State Infrastructure Matters

  • States influence funding, and care access
  • Year-round activation capacity is essential

Call to Action: Recruiting State Leads

  • Current number of state leads (6) vs. 44 open states
  • What a state lead does (time commitment, interviews, mobilization)
  • How leads help close gaps during federal pushes
  • Invitation for attendees to volunteer
  • Map of current CAC2 activity

Bubble Up Platform Preview

  • What Bubble Up is and why it matters
  • How it will support communication, tracking, and activation
  • Soft, high-level preview (no full tutorial—platform still in build phase)

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