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CAC2 Webinar–“Beyond the Signature: Demystifying Informed Consent in Childhood Cancer”

In CAC2's June webinar, "Beyond the Signature: Demystifying Informed Consent in Childhood Cancer," we brought together an extraordinary panel of experts, including a clinical ethicist, a pediatric oncologist, and a parent advocate, who each offered unique and deeply informed perspectives on how we can make this informed consent process more ethical, transparent, and truly family-centered. Informed consent is more than just a signature on a form.  It is a vital process that ensures families understand, trust, and feel empowered in the face of one of the hardest decisions they may ever make: enrolling their child in a clinical trial. In [...] Read more

Guest Blog–SAVE MEDICAID (SENATE): Materials to Share with your Communities

At CAC2 we are focused on children with cancer, but the issues impacting them are wide ranging and often far bigger than what the childhood cancer community can accomplish on their own.  We align with others— sometimes leading the charge, sometimes following and supporting their efforts. The following post is an updated Call to Action from the Haystack Project: The Voices of Rare and Ultra Rare (https://haystackproject.org). Shared with permission from and thanks to the Haystack Project We know many rare disease families rely on Medicaid as a primary or secondary insurance provider. Medicaid as you know it and rely […]

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Guest Blog–SAVE MEDICAID: Materials to Share with your Communities

At CAC2 we are focused on children with cancer, but the issues impacting them are wide ranging and often far bigger than what the childhood cancer community can accomplish on their own.  We align with others— sometimes leading the charge, sometimes following and supporting their efforts. The following post is a Call to Action from the Haystack Project: The Voices of Rare and Ultra Rare (https://haystackproject.org). Shared with permission from and thanks to the Haystack Project We know many rare disease families rely on Medicaid as a primary or secondary insurance provider. Medicaid as you know it and rely on […]

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CAC2 Webinar–“Fertility Hope for Childhood Cancer Survivors”

In CAC2's May webinar, "Fertility Hope for Childhood Cancer Survivors" our speakers explored fertility preservation and future family building options for childhood cancer patients and survivors. Dr. Leena Nahata (Nationwide Children’s Hospital) spoke first and covered a range of topics including How and when to have fertility preservation conversations Risk stratification overview Ovarian tissue cryopreservation Testicular tissue cryopreservation Egg and sperm banking Long term storage Megan Scherer (Worth the Wait) and CAC2 Member Nick Giallourakis (Elephants and Tea) followed and provided real world stories concerning helping survivors with fertility preservation and family building, the importance of providing stories of hope [...] Read more

CAC2 Drop-In Session–“Know Before You Go, Preparing to Attend the CAC2 Summit in June”

If you weren't able to join us for the "Know Before You Go" drop-in session for CAC2 Members it isn't too late to catch up on all the action.  We held this session to help who have already registered for the CAC2 Summit in Washington DC this June prepare for the upcoming CAC2 Summit. We covered everything you need to feel informed, empowered, and ready to make the most of your summit experience. Watch the recording below and review the slide deck where we walked through the highlights and shared engagement tips to ensure a meaningful event for all. VIDEO RECORDING [...] Read more

CAC2 Webinar–“Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding”

In CAC2's April pop-up webinar, "Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding," our special guest, Dr. Kimryn Rathmell, shared compelling insights on the evolving pediatric cancer landscape and the role of advocates. Dr. Rathmell recently completed her appointment as the 17th Director of the National Cancer Institute and has taken a new role as CEO of the Ohio State James Cancer Hospital and Solve Research Institute. Her presentation drew from a distinguished career of scientific excellence and compassionate leadership that spanned from her acclaimed work in kidney cancer genomics to her vision for the future [...] Read more

Guest Blog–Applications Open: 2025 HBF Inspiration Award for Early Career Investigators in Pediatric Brain Cancer

    Overview: Now in its 6th year, the Hopper-Belmont Foundation (“HBF”) Inspiration Award aims to motivate young investigators to make a difference early in their careers by providing a personal award recognizing concepts and/or projects in one of the following areas: Innovation: Recognition of an innovative idea in need of proof of concept/data prior to applying for larger grants from NIH or other funding resources Aspiration: Providing resources to begin or to further research in a designated HBF focus area This is a $5,000 award that can be used at the discretion of the winner, e.g. personal or research. […]

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CAC2 Childhood Cancer Community News Digest (April 14-20)

Assorted News from the Last Week: CAC2 Individual Member Robert Dilley blogging about why sustained research funding is essential to progress. AACR issues calls to action to advocacy colleagues and supporters of NIH funding. NCI Annual Report to the Nation:  "Cancer death rates in children declined steadily over the study period; those for adolescents and young adults also declined until recently, when the decline slowed and stabilized." A new study suggests that early-life exposure to two widespread environmental pollutants -- small particle air pollution and outdoor artificial light at night -- could increase the risk of pediatric thyroid cancer. CT [...] Read more

CAC2 Webinar–“The Role of AI from Diagnosis to Treatment for Childhood Cancer”

In CAC2's April webinar, "The Role of AI from Diagnosis to Treatment for Childhood Cancer," our speakers explored how Artificial Intelligence is being used in pediatric cancer and how to harness the full potential on behalf of patients by enhancing diagnosis, treatment planning, and patient outcomes. Dr. Resnick spoke first and articulated how Artificial Intelligence (AI) will play a transformative role in pediatric cancer research by enhancing diagnosis, treatment planning, and patient outcomes. AI is being used to analyze complex datasets, improve the speed, provide new diagnostic capabilities, accuracy, and personalize treatment strategies, thereby creating new opportunities for children with [...] Read more

Guest Blog–AACR Issues Calls to Action to Advocacy Colleagues and Supporters of NIH Funding

Shared with permission from and thanks to the American Association for Cancer research. This post contains information about the “Rally for Medical Research ‘On the Road’” initiative, which probably could not be coming at a more important time based on all of the troubling and concerning news for medical research that seems to be reported on a daily basis. The most troubling of the news was reported last week when a leaked document showed that there may be plans for a 40 percent cut (a $20 billion cut) to NIH’s budget as part of the FY2026 White House budget request. […]

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