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Member Blog–I Survived Leukemia Because of a Clinical Trial. Will Future Patients Be So Lucky?

April 21, 2025
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By CAC2 Individual Member Robert Dilley writing about why sustained research funding is essential to progress. This essay first appeared on April 15 in MedPage Today. I don’t usually talk about my cancer diagnosis. But as a physician-scientist who survived leukemia at 18 years old and now cares for people facing their own cancer diagnoses, I feel compelled to share my story — because it speaks directly to what’s at stake in medicine today. The clinical trial that saved my life wouldn’t have existed without robust investment in biomedical research. And as debates over federal research funding continue, I think about […]

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CAC2 Childhood Cancer Community News Digest (March 31-April 6)

April 7, 2025
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Assorted News from the Last Week: A pan-Canadian team has developed a new way to quickly find personalized treatments for young cancer patients, by growing their tumors in chicken eggs and analyzing their proteins. The United States Food and Drug Administration (FDA) has granted Rare Pediatric Disease Designation for NEO100 (perillyl alcohol) in the treatment of pediatric-type diffuse high-grade gliomas. Adolescents and young adults (AYAs) (aged 13-39 years) represent a growing segment of the cancer population who face distinct challenges in receiving care, leading to adverse treatment experiences and stagnant survival outcomes. Preventable pediatric cancer mortality surges in areas of [...] Read more

CAC2 Childhood Cancer Community News Digest (March 24-30)

March 31, 2025
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Assorted News from the Last Week: A man who battled childhood cancer has received the first known transplant of sperm-producing stem cells, in a study aimed at restoring the fertility of cancer's youngest survivors. Projections suggest that 45.6% of childhood cancer survivors would die before reaching 65 years of age, compared to 15.0% of the general population. Children constitute 7.2% of annual cancer cases in Nigeria. U.S. Senators Michael Bennet (D-Colo.) and Markwayne Mullin (R-Okla.) introduced the Give Kids a Chance Act, which would give children with cancer access to combination therapy trials. The bill will also incentivize pharmaceutical companies [...] Read more

Member Blog–Awareness & Entertainment Opportunity: Audrey’s Children

March 11, 2025
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By CAC2 Individual Member Stan Robbins  Let’s continue to raise awareness about childhood cancer! AUDREY’S CHILDREN is the extraordinary true story of Dr. Audrey Evans, a pioneering pediatric oncologist who developed the revolutionary staging system for treating Neuroblastoma. She also co-founded the Ronald McDonald House, giving families of seriously ill children a much-needed home away from home. We’re also excited to share that Joe McDonough, Founder of The Andrew McDonough B+ Foundation and a valued CAC2 member, was involved in the production of this inspiring film. This connection makes the movie even more meaningful to our community!  In theaters nationwide – March 28th!      Watch the trailer: https://youtu.be/KjgEzCNRY5I?si=d0z4vEPDr-oW3OGA […]

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CAC2 Childhood Cancer Community News Digest (February 28-March 2)

March 3, 2025
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Assorted News from the Last Week: Thanks to all for a fantastic Action Day on February 28.  348 advocates from 40 states participated and shared their stories in 222 meetings, asking for congressional support for important legislation and funding for childhood cancer. Celebrating collaborative achievement: CAC2 Member Arms Wide Open Childhood Cancer Foundation and Supporting Member The Brain Bodega are launching a pilot program that offers personalized academic support for childhood/teen cancer fighters, survivors, and siblings. The Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers: A Review Study shows possible links between PFAS [...] Read more

CAC2 Collaborative Achievement: Pilot Program to Provide Academic Support Children and Teens Affected by Cancer

February 28, 2025
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CAC2 Member Arms Wide Open Childhood Cancer Foundation and Supporting Member The Brain Bodega are launching a pilot program that offers personalized academic support for childhood/teen cancer fighters, survivors, and siblings. This pilot program addresses the unique challenges faced during and after cancer treatment. This partnership is unique because The Brain Bodega was founded by a childhood/teen cancer survivor who understands the firsthand struggle. This is more than just tutoring - it's comprehensive academic mentoring tailored to each student's needs by mentors who get it. Key features: One-hour weekly sessions from March 15 to June 15 Open to 20 students [...] Read more

Community News–Childhood Cancer Advocates Support Successful 2025 Action Day!

February 28, 2025
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The Alliance for Childhood Cancer sends its thanks for a fantastic Action Day on February 28.  348 advocates from 40 states participated and shared their stories in 222 meetings, asking for congressional support for important legislation and funding for childhood cancer.  CAC2 members, Alliance members, and many others across the country had their voices heard. This year’s asks: ASK 1:  Prioritize a “Childhood Cancer Package” Last year, the House of Representatives unanimously passed two bills with important provisions related to pediatric drug development, clinical trials, and access to care. Together, these bills represent the most influential childhood cancer legislation since […]

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CAC2 Childhood Cancer Community News Digest (February 17-23)

February 24, 2025
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Assorted News from the Last Week: The Childhood Cancer Data Initiative (CCDI) is piloting data federation with Kids First Data Resource Center, the Pediatric Cancer Data Commons, St. Jude Cloud, and the Treehouse Childhood Cancer Data Initiative. These resources provide information about genomic, clinical, imaging, and biospecimen data in these data sets. This list will expand as more organizations implement CCDI’s data federation API. How genetics shape blood proteins during development from childhood to adolescence. Penn State's THON sets record, raises over $17 million for pediatric cancer research. Allogeneic approach unlocks CAR T cell benefits in solid tumors. Using the [...] Read more

CAC2 Childhood Cancer Community News Digest (February 10-16)

February 17, 2025
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Assorted News from the Last Week: Leo Messi, Alejandra & Richard Gere, Princess Dina supporting OncoThon for childhood cancer research joined the best and the brightest scientists, advocates, and allies to support Oncothon 2025. The immunotherapy drug blinatumomab (Blincyto) is already a standard treatment for some people with acute lymphoblastic leukemia (ALL). Following positive results from a large clinical trial, it’s now expected to become part of the standard initial treatment for many children with the disease. Factors driving stark inequalities for survival rates for children with cancer in low and middle-income countries and how to narrow that survival gap. [...] Read more

CAC2 Childhood Cancer Community News Digest (February 3-9)

February 10, 2025
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Assorted News from the Last Week: CAC2 Member Annette Logan-Parker (Cure 4 the Kids Foundation) explains why she joined the CAC2 Innovation Council. A research paper by Dr. Anahita Fathi Kazerooni, Dr. Adam Kraya, and other colleagues, published in the prestigious Nature Communications Journal, sheds new light on the complexities of pediatric low-grade gliomas. People with cancer are living longer than everopens in a new tab or window, but many of them have to deal with long-lasting effects of the disease and treatment. Pediatric tumors are often driven by one or two spontaneous mutations, whereas adult tumors can have hundreds [...] Read more
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