Assorted News from the Last Week:
CAC2 Supporting Organization Jazz Pharmaceuticals announced that the FDA granted accelerated approval for Modeyso™ (dordaviprone) for the treatment of adult and pediatric patients 1 year of age and older with diffuse midline glioma harboring an H3 K27M mutation with progressive disease following prior therapy.
Why cutting-edge cancer therapies remain out of reach for too many families—and what needs to change.
Finding a clue to the origin of treatment-resistant leukemia in kids.
Q&A: Why adolescents and young adults with cancer are falling behind.
Targeting sleeping tumor cells: Oncogene location may determine neuroblastoma’s resistance to cancer therapy.
AI and digital health for childhood cancer care in Ghana.
Upcoming Webinars, Online Opportunities, and Meetings:
Great Gold Rush Race, a 5K Run/3K walk and family festival with DJ, food, auctions, games, magic show, and new this year cornhole tournament. Registration at 11:00 CT with race start at noon on September 7. Click here for more information and to register.
The Golden Toast is an annual event held in Washington, D.C., hosted by The Carson Leslie Foundation to celebrate the childhood cancer community and their legislative achievements. This year’s event will be on Thursday September 18. Click here for more information and to register.
Austin Hatcher Foundation will hold its18th annual Celebration of Life and Hope on September 20 at 7:00 ET. Click here for more information and to register.
Rocky Mountain Vintage Racing is pleased to announce Race Against Kids’ Cancer (RAKC), which will be at High Plains Raceway where these wonderful cars of all years and vintages are invited to gather to celebrate this class and September 27-28. Click here for more information and to register.
NCI Office of Data Sharing will host a Data Jamboree that focuses on finding and accessing datasets, building specific pediatric cancer cohorts, and aggregating or linking datasets from various data systems still present tremendous challenges for the wider research and care community, on September 29 and 30, 2025. Click here for more information and to register.
The National Cancer Institute’s CCDI Symposium is happening this October in person in Bethesda, MD or online! Click here to register..
Past Recordings:
Seeing a Different Future: A true story of passion, partnership, and progress for children with brain tumors
Creating a Seamless Transition from Pediatric to Adult Patient Cancer Care
Take Action:
The Alternatives Research & Development Foundation (ARDF) is excited to announce a new funding opportunity through our Alternatives in Research (AiR) Challenge program: Focus on Childhood Cancer. The Focus on Childhood Cancer program will fund promising proposals that use innovative and human-relevant research methods to address challenging and important research questions related to childhood cancers.
Key Information:
- Maximum award per project is $210,000 (up to five awards total)
- LOI Deadline: September 15, 2025
- Projects must specifically focus on childhood cancer and address the program’s dual aims: improving knowledge or treatment of childhood cancer, and demonstrating the value of non-animal approaches in biomedical research
- Eligible applicants must be affiliated with a US-based non-profit, tax-exempt, non-governmental educational or research institution.
The AiR Challenge: Focus on Childhood Cancer program is now accepting LOIs through ARDF’s application portal on Proposal Central. To learn more, visit: https://www.ardf-
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