CAC2 Childhood Cancer Community News Digest (January 19-25)

Assorted News from the Last Week:

Over the past year, CAC2 Supporting Organization Member LifeArc has hosted a series of twelve virtual workshops bringing together experts in childhood cancer to discuss the latest scientific evidence and where future research should focus.

CAC2 Supporting Organization Member Focused Ultrasound Foundation recently hosted workshop on focused ultrasound for diffuse intrinsic pontine glioma (DIPG) and the white paper for the meeting is available now.

Connect with the latest CAC2 blog post:  The Silent Crisis of Financial Toxicity & Where to Find Help.

The quintessential role for CAR T cell therapy in children, adolescents and young adults with cancer.

Introducing iCatalog as a clinical decision support tool for collaborative pediatric precision oncology studies.

Major review highlights barriers to follow-up care for childhood cancer survivors.

New therapy combination yields high remission rates in early-stage Hodgkin lymphoma.

Childhood cancer survivors face increased cardiometabolic risks from cancer treatment exposures.

Upcoming Webinars, Online Opportunities, and Meetings:

“Psychosocial Screening in Pediatric Cancer: Recommendations from the Advancing Childhood Cancer Experience, Science & Survivorship (ACCESS) National Consortium and Next Steps”  Thursday, January 29, noon ET.  Click here for more information and to register.

Action Days 2026 will be held in Washington, D.C. from February 24-25, 2026. Registration is open! Action Days registration will close on Friday, January 30, or when we reach 225 participants. Click here for more information and to register.

 

FDA will host Rare Disease Day, a virtual public meeting, on Monday, February 23, 2026 in global observance of Rare Disease Week. The theme is:Moving Forward. Looking Ahead. An Event for Patients.Click here for more information and to register.

11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1.  Click here for more information and to register.

National Brain Tumor Society and volunteer advocates from across the country will come together in Washington, D.C., for Head to the Hill on May 3-5, 2026. Register today.

Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  This year the meeting will be in Columbus, Ohio June 25-27.  Click here for information and to register.

Take Action:

The American Association for Cancer Research (AACR) is pleased to invite patient advocacy organizations working within the cancer community to exhibit in the Advocacy Partners Pavilion at the AACR Annual Meeting 2026 in San Diego, CA (April 17-22, 2026). Due to overwhelming interest from the advocacy community, AACR has opened additional booths, but availability remains limited. There is no fee to exhibit in the Advocacy Partners Pavilion. Accepted exhibitors will receive two (2) complimentary all-access passes to the conference, on-demand recordings, use of the Advocate Lounge, and five (5) complimentary exhibitor badges. Exhibitors are accepted on a first-come, first-served basis and only a few spaces remain.

The ASCO-Sponsored Patient Advocacy Booth provides an opportunity for not-for-profit patient advocacy organizations to promote their programs, services, and resources to the professional oncology community. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Learn more.

The Conquer Cancer® Patient Advocate Award Program provides a limited number of awards for patient advocates to attend the ASCO Annual Meeting to learn of important advances in their areas of interest. Awards help cover travel, hotel, and registration expenses and are based primarily on financial need, advocacy experience, and current advocacy activities and involvement. The application period opens Monday, March 9 at 10:00 AM (ET) and closes Monday, March 16 at 5:00 PM (ET).


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