Assorted News from the Last Week:
Muscle weakness in cancer survivors may be caused by treatable weakness in blood vessels.
An aggressive childhood cancer case opens new avenues for advanced cell therapies
The Childhood Cancer Data Initiative Hub now includes five new pages—Cohort Analyzer, Data Model Navigator, Studies Listing, Study Details, and Tools—and three new help resources: an in-page web help browser and tutorial video for the Explore Dashboard, and a guide for data submission.
Children in India living near oil and gas wells face higher risk of rare leukemia. Study finds key mechanism driving neuroblastoma progression.
Upcoming Webinars, Online Opportunities, and Meetings:
Triage Cancer will host a webinar at 2:00 ET on Thursday, July 24, to explain what’s included in the newly passed Budget Reconciliation Act, also called the “Big Beautiful Bill.” Click here to register.
Entertainment to Affect Change (E2AC) invites you to attend the Boston screening of Seeing a Different Future, a documentary film focused on the people and partnerships that together led to meaningful progress in the treatment of the most common type of pediatric brain tumor at WBUR CitySpace, Boston, 6:00 pm ET on Wednesday, July 23, 2025. Click here for event details and to reserve your seat.
Access to reliable healthcare coverage is critical for families of children with brain tumors and other serious conditions. Join the Pediatric Brain Tumor Foundation and CAC2 for a free webinar on July 30 at 1:00 ET to explore how Medicaid impacts pediatric cancer care and what proposed policy changes could mean for families. Click here to register.
Great Gold Rush Race, a 5K Run/3K walk and family festival with DJ, food, auctions, games, magic show, and new this year cornhole tournament. Registration at 11:00 CT with race start at noon on September 7. Click here for more information and to register.
The Golden Toast is an annual event held in Washington, D.C., hosted by The Carson Leslie Foundation to celebrate the childhood cancer community and their legislative achievements. This year’s event will be on Thursday September 18. Click here for more information and to register.
Austin Hatcher Foundation will hold its18th annual Celebration of Life and Hope on September 20 at 7:00 ET. Click here for more information and to register.
Rocky Mountain Vintage Racing is pleased to announce Race Against Kids’ Cancer (RAKC), which will be at High Plains Raceway where these wonderful cars of all years and vintages are invited to gather to celebrate this class and September 27-28. Click here for more information and to register.
NCI Office of Data Sharing will host a Data Jamboree that focuses on finding and accessing datasets, building specific pediatric cancer cohorts, and aggregating or linking datasets from various data systems still present tremendous challenges for the wider research and care community, on September 29 and 30, 2025. Click here for more information and to register.
The National Cancer Institute’s CCDI Symposium is happening this October in person in Bethesda, MD or online! Click here to register..
Past Recordings:
European Parliament Hearing on Pharma Legislation: A Spotlight on Childhood Cancer Needs – SIOPE
AstraZeneca’s Patient Advocacy Exchange event at ASCO.
A recent episode of PBS Medical Stories titled “Carson’s Battle with Neuroblastoma” is currently available on CAC2 Supporting Organization United Therapeutics website and will soon be available for streaming on the PBS/Inventi Media YouTube channel and the and Medical Stories website.
Take Action:
The Childhood Cancer Data Jamboree (https://events.cancer.gov/nci/ods-data-jamboree) will be held on September 2025, 09/29 – 09/30. Interested individuals are highly encouraged to join this event, register and submit a project abstract summary concurrently. Before submitting a project abstract, interested folks are encouraged to identify potential datasets to be accessed and used, and tools if applicable (see Resources) to solve a specific question. The project abstracts will be reviewed and selected by a committee after the due date of June 23. Even if they are just looking to join a team without proposing project ideas, they can submit an abstract indicating their areas of interest. Travel sponsorship will be considered once the project is selected and their attendance confirmed.
The National Academies Committee on Strategies to Enhance Pediatric Health Research Funded by NIH invites pediatric patients and their families to share their experiences, thoughts, and perspectives on NIH-supported pediatric research. Click for more information or Click to submit your experience.
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