CAC2 Childhood Cancer Community News Digest (July 21-27)

Assorted News from the Last Week:

Researchers at the University of Florida are moving closer to developing what they have described as a “universal” cancer vaccine.

The US Food and Drug Administration (FDA) has announced the appointment of pediatric oncology trained doctor George Francis Tidmarsh, as Director of the Center for Drug Evaluation and Research (CDER).

Extracellular matrix pathway emerges as treatment target for pediatric cancer.

Doxorubicin causes cognitive impairment and alters gut microbiota in both male and female juvenile rats.

The psychosocial intervention, Family Talk Intervention, remained beneficial for families facing pediatric oncology experiences even 4–5 years after their participation.

The unseen battle against childhood cancer in Nigeria.

Functional problems shift over time among children after brain tumor treatment.

FDA approves Doptelet with sprinkle form for pediatric immune thrombocytopenia.

Upcoming Webinars, Online Opportunities, and Meetings:

Access to reliable healthcare coverage is critical for families of children with brain tumors and other serious conditions. Join the Pediatric Brain Tumor Foundation and CAC2 for a free webinar on July 30 at 1:00 ET to explore how Medicaid impacts pediatric cancer care and what proposed policy changes could mean for families. Click here to register.

Great Gold Rush Race, a 5K Run/3K walk and family festival with DJ, food, auctions, games, magic show, and new this year cornhole tournament. Registration at 11:00 CT with race start at noon on September 7.  Click here for more information and to register.

The Golden Toast is an annual event held in Washington, D.C., hosted by The Carson Leslie Foundation to celebrate the childhood cancer community and their legislative achievements.  This year’s event will be on Thursday September 18.  Click here for more information and to register.

Austin Hatcher Foundation will hold its18th annual Celebration of Life and Hope on September 20 at 7:00 ET. Click here for more information and to register.

Rocky Mountain Vintage Racing is pleased to announce Race Against Kids’ Cancer (RAKC), which will be at High Plains Raceway where these wonderful cars of all years and vintages are invited to gather to celebrate this class and September 27-28.  Click here for more information and to register.

NCI Office of Data Sharing will host a Data Jamboree that focuses on finding and accessing datasets, building specific pediatric cancer cohorts, and aggregating or linking datasets from various data systems still present tremendous challenges for the wider research and care community, on September 29 and 30, 2025.  Click here for more information and to register.

The National Cancer Institute’s CCDI Symposium is happening this October in person in Bethesda, MD or online! Click here to register..

Past Recordings:

Seeing a Different Future: A true story of passion, partnership, and progress for children with brain tumors

European Parliament Hearing on Pharma Legislation: A Spotlight on Childhood Cancer Needs – SIOPE

AstraZeneca’s Patient Advocacy Exchange event at ASCO.

A recent episode of PBS Medical Stories titled “Carson’s Battle with Neuroblastoma” is currently available on CAC2 Supporting Organization United Therapeutics website and will soon be available for streaming on the PBS/Inventi Media YouTube channel and the and Medical Stories website.

Take Action:

Every day, families of children with DIPG, a universally fatal brain tumor are told there are no effective treatments. Today there is a real chance to change that. Researchers Dr. Elias Sayour and Eugene Hwang at the University of Florida and Children’s National Hospital have developed a groundbreaking immunotherapy using onion-like nanoparticles to activate a child’s own immune system against DIPG. This is an urgent call to the Department of Health and Human Services and the National Institutes of Health to restore funding for this trial and protect the future of pediatric brain cancer treatment.  Click here for more information and to sign the petition.


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Vickie Buenger

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