CAC2 Childhood Cancer Community News Digest (June 23-29)

Assorted News from the Last Week:

Nutritional status, body composition, and chemotherapy dosing in children and young people with cancer: a systematic review by the SIOP nutrition network.

Dexrazoxane mitigates long-term cardiotoxicities of doxorubicin for young patients.

When B-cells turn cancerous may decide fate of childhood leukemia treatment.

Survey shows few adults recognize testicular cancer as affecting young men.

IAEA and St. Jude Children’s Research Hospital partner to bridge gap in global childhood cancer care.

Lab-grown tumors spark hope for developing better treatment therapies for children with medulloblastoma.

A cancer center in Jordan treats kids from Gaza, but only a few dozen have arrived.

Upcoming Webinars, Online Opportunities, and Meetings:

Entertainment to Affect Change (E2AC) invites you to attend the Boston screening of Seeing a Different Future, a documentary film focused on the people and partnerships that together led to meaningful progress in the treatment of the most common type of pediatric brain tumor at WBUR CitySpace, Boston, 6:00 pm ET on Wednesday, July 23, 2025. Click here for event details and to reserve your seat.

Austin Hatcher Foundation will hold its18th annual Celebration of Life and Hope on September 20 at 7:00 ET. Click here for more information and to register.

Rocky Mountain Vintage Racing is pleased to announce Race Against Kids’ Cancer (RAKC), which will be at High Plains Raceway where these wonderful cars of all years and vintages are invited to gather to celebrate this class and September 27-28.  Click here for more information and to register.

NCI Office of Data Sharing will host a Data Jamboree that focuses on finding and accessing datasets, building specific pediatric cancer cohorts, and aggregating or linking datasets from various data systems still present tremendous challenges for the wider research and care community, on September 29 and 30, 2025.  Click here for more information and to register.

Take Action:

The Senate is considering a budget bill they hope to pass by July 4 that will substantially reduce funding for Medicaid. This will negatively affect the many children with cancer who receive their insurance through the federal government. This link contains an advocacy toolkit for folks to use to oppose cuts to Medicaid and is designed for organizations of all sizes to be able to participate in whichever way they’re able. It includes:

  • Advocacy alert text
  • Social media graphics and sample posts
  • Template LTE’s with a guide on how to place them in their local newspapers
  • Phone script for calls to Senate offices

The Childhood Cancer Data Jamboree (https://events.cancer.gov/nci/ods-data-jamboree) will be held on September 2025, 09/29 – 09/30. Interested individuals are highly encouraged to join this event, register and submit a project abstract summary concurrently. Before submitting a project abstract, interested folks are encouraged to identify potential datasets to be accessed and used, and tools if applicable (see Resources) to solve a specific question. The project abstracts will be reviewed and selected by a committee after the due date of June 23. Even if they are just looking to join a team without proposing project ideas, they can submit an abstract indicating their areas of interest. Travel sponsorship will be considered once the project is selected and their attendance confirmed.

The National Academies Committee on Strategies to Enhance Pediatric Health Research Funded by NIH invites pediatric patients and their families to share their experiences, thoughts, and perspectives on NIH-supported pediatric research. Click for more information or  Click to submit your experience.


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