Assorted News from the Last Week:
Almost half of FDA approved pediatric indications for oncology therapeutics were supported by data from COG trials, highlighting the effectiveness of this public–private partnership model in producing the level of clinical evidence required for regulatory success.
Survivorship focus:
- Patient-reported symptoms in predicting the subsequent progression of chronic health conditions among childhood cancer survivors
- Optimizing prompting strategies improves large language model classification of pain- and fatigue-related functional impact in childhood cancer survivors
- Artificial intelligence learns to make sense of childhood cancer survivors’ health care needs
Leukemia focus:
Upcoming Webinars, Online Opportunities, and Meetings:
Following the cancellation of the 2025 Childhood Cancer Data Initiative (CCDI) Symposium originally scheduled for last fall, NCI will inaugurate the CCDI Virtual Symposium Series in the coming weeks. Sessions will occur across multiple days in March and April. Click Here to Learn More and Register.
On April 9, 2026 DICER1 Registry Symposium and Family Meeting will meet virtually to discuss DICER1 surveillance, testing, and novel approaches. General Registration.
Elevate Childhood Cancer, in partnership with the Kidney Cancer Association, will host the FIRST-ever Wilms Tumor Virtual Forum: Connecting Families and Experts on April 30, 2026. Click here for more information and to register.
11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1. Click here for more information and to register.
Richi Foundation invites the public to the Carnival of Colors to celebrate, foster community, and enjoy being together from 11:00 am to 5:00 pm ET on May 2. Click here for more information and to register.
National Brain Tumor Society and volunteer advocates from across the country will come together in Washington, D.C., for Head to the Hill on May 3-5, 2026. Register today.
Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease. This year the meeting will be in Columbus, Ohio June 25-27. Click here for information and to register.
Take Action:
The EVAN Foundation is now accepting applications from high-risk childhood cancer survivors and patients for the 2026 Evan Lindberg & Erik Ludwinski College Scholarship Program. Students must be accepted into a 4-year undergraduate institution, enrolling in the fall of 2026, and demonstrate a need for financial assistance.
- Awards & Key Dates: Eight $10,000 scholarships will be awarded. Applications are accepted from March 15th to May 1st, with winners announced July 1st. Each winner will receive $2,500 in scholarship support their freshman year. Funding will be renewed annually (for a total of $10,000 over 4 years), if eligibility requirements are maintained.
- For More Information & To Apply Please Visit: Childhood Cancer Survivor Scholarship Information — The EVAN Foundation
- Contact: info@theevanfoundation.org
Shir for Life is looking for families willing to share their neuroblastoma story as part of International Neuroblastoma Awareness Day on December 5, 2026. Selected families will be featured across global awareness campaigns, representing the voices of children and families from around the world. We welcome stories at any stage: diagnosis, treatment, survivorship, or remembrance. All stories are handled with care, and families have full approval over how their story is shared.
- Interested? Complete this short form: https://forms.gle/FgkBsT
UhZdNCg323A - Questions? Contact Einat at: einat@shirforlife.com
- Learn more about #NeuroblastomaDay: neuroblasto
maday.org
EXTENDED DEADLINE TO PARTICIPATE! CAC2 Innovation Council Recommendation: Rehabilitation Practices in Pediatric Oncology
The Requester: Catherine Demers, Assistant Professor at University of Quebec in Trois-Rivières
The Type of Request: Request for Participation:
Overview of the Opportunity: The requestor invites children and adolescents affected by cancer, survivors of childhood cancer, and family members of children affected by cancer who are 16 years old and older to participate in a research project by completing an online questionnaire. The goal is to better understand their current or past rehabilitation needs related to cancer or treatments.
The Ask: Please consider disseminating this opportunity among your members and network by sharing the information below and/or the attached poster that asks them to complete a research questionnaire.
Access the questionnaire here: www.uqtr.ca/shapingthefuture
Updated Deadline to participate: May 15th, 2026
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