CAC2 Childhood Cancer Community News Digest (March 30-April 5)

Assorted News from the Last Week:

CAC2 Individual Member Laura DeKraker Lang-Ree provides a crucial look at self-advocacy for children and families with cancer in this week’s Member Blog.

FDA has approved the immune checkpoint inhibitor nivolumab in combination with chemotherapy for adults and adolescents 12 and older with previously untreated Stage III/IV classic Hodgkin lymphoma.

Mothering on the Margin essay series features a mother and child with bilateral retinoblastoma in Mexico City.

Childhood cancer contributes substantially to global childhood mortality and global cancer burden.

Scientists uncover the hidden defenses of a deadly childhood cancer.

Upcoming Webinars, Online Opportunities, and Meetings:

Following the cancellation of the 2025 Childhood Cancer Data Initiative (CCDI) Symposium originally scheduled for last fall, NCI will inaugurate the CCDI Virtual Symposium Series in the coming weeks. Sessions will occur across multiple days in March and April.  Click Here to Learn More and Register.

On April 9, 2026 DICER1 Registry Symposium and Family Meeting will meet virtually to discuss DICER1 surveillance, testing, and novel approaches. General Registration.

Elevate Childhood Cancer, in partnership with the Kidney Cancer Association, will host the FIRST-ever Wilms Tumor Virtual Forum: Connecting Families and Experts on April 30, 2026. Click here for more information and to register.

11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1.  Click here for more information and to register.

Richi Foundation invites the public to the Carnival of Colors to celebrate, foster community, and enjoy being together from 11:00 am to 5:00 pm ET on May 2.  Click here for more information and to register.

National Brain Tumor Society and volunteer advocates from across the country will come together in Washington, D.C., for Head to the Hill on May 3-5, 2026. Register today.

Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  This year the meeting will be in Columbus, Ohio June 25-27.  Click here for information and to register.

Take Action:

The EVAN Foundation is now accepting applications from high-risk childhood cancer survivors and patients for the 2026 Evan Lindberg & Erik Ludwinski College Scholarship Program.  Students must be accepted into a 4-year undergraduate institution, enrolling in the fall of 2026, and demonstrate a need for financial assistance. 

  • Awards & Key Dates:  Eight $10,000 scholarships will be awarded. Applications are accepted from March 15th to May 1st, with winners announced July 1st.  Each winner will receive $2,500 in scholarship support their freshman year.  Funding will be renewed annually (for a total of $10,000 over 4 years), if eligibility requirements are maintained.  
  • For More Information & To Apply Please Visit: Childhood Cancer Survivor Scholarship Information — The EVAN Foundation
  • Contact:  info@theevanfoundation.org

 

Shir for Life is looking for families willing to share their neuroblastoma story as part of International Neuroblastoma Awareness Day on December 5, 2026. Selected families will be featured across global awareness campaigns, representing the voices of children and families from around the world. We welcome stories at any stage: diagnosis, treatment, survivorship, or remembrance. All stories are handled with care, and families have full approval over how their story is shared.

 


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