Assorted News from the Last Week:
Featured CAC2 blog post this week: Summer Camps for Kids with Cancer: A Family Guide.
CAC2 Members (Mattie Miracle Foundation and Andrew McDonough B+ Foundation) work together and with others to support Pschyospocial Standards of Care through peer-reviewed publications:
- Partnership With Patient Advocacy Organizations Improves Research Recruitment
- Benchmarks for Psychosocial Staffing in Pediatric Oncology: Implementing the Standards Together—Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study
- Delivering Care Consistent With the Psychosocial Standards—Provider Report: Implementing the Standards Together—Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study
Proteomic landscape of Ewing sarcoma primary tumors and metastases.
Analysis reveals interesting structural variant landscape driving pediatric cancer development.
Family of child cancer survivor caught in settlement ‘doubling’ fears after visa rule overhaul.
Upcoming Webinars, Online Opportunities, and Meetings:
Following the cancellation of the 2025 Childhood Cancer Data Initiative (CCDI) Symposium originally scheduled for last fall, NCI will inaugurate the CCDI Virtual Symposium Series in the coming weeks. Sessions will occur across multiple days in March and April. Click Here to Learn More and Register.
2026 DICER1 Registry Symposium and Family Meeting will meet virtually to discuss DICER1 surveillance, testing, and novel approaches. General Registration.
Elevate Childhood Cancer, in partnership with the Kidney Cancer Association, will host the FIRST-ever Wilms Tumor Virtual Forum: Connecting Families and Experts on April 30, 2026. Click here for more information and to register.
11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1. Click here for more information and to register.
Richi Foundation invites the public to the Carnival of Colors to celebrate, foster community, and enjoy being together from 11:00 am to 5:00 pm ET on May 2. Click here for more information and to register.
National Brain Tumor Society and volunteer advocates from across the country will come together in Washington, D.C., for Head to the Hill on May 3-5, 2026. Register today.
Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease. This year the meeting will be in Columbus, Ohio June 25-27. Click here for information and to register.
Past Recordings:
Hepatoblastoma Webinar in Honor of Rare Disease Day 2026
Take Action:
The American Association for Cancer Research (AACR) is pleased to invite patient advocacy organizations working within the cancer community to exhibit in the Advocacy Partners Pavilion at the AACR Annual Meeting 2026 in San Diego, CA (April 17-22, 2026). Due to overwhelming interest from the advocacy community, AACR has opened additional booths, but availability remains limited. There is no fee to exhibit in the Advocacy Partners Pavilion. Accepted exhibitors will receive two (2) complimentary all-access passes to the conference, on-demand recordings, use of the Advocate Lounge, and five (5) complimentary exhibitor badges. Exhibitors are accepted on a first-come, first-served basis and only a few spaces remain.
The ASCO-Sponsored Patient Advocacy Booth provides an opportunity for not-for-profit patient advocacy organizations to promote their programs, services, and resources to the professional oncology community. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Learn more.
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