Assorted News from the Last Week:
Upcoming Webinars, Online Opportunities, and Meetings:
CureSearch Pediatric Early Development Symposium: Leveraging Big Data to Advance Pediatric Clinical Trials, on October 12-14. Details and Registration Link.
Join The Leukemia & Lymphoma Society on Wednesday October 19 for a childhood cancer community virtual Day of Action! Interested organizations will be participating in a flurry of activities urging congress to pass both the Childhood Cancer STAR Reauthorization Act and the Accelerating Kids’ Access to Care Act(AKACA) into law before the end of the year. Contact Matt Marks (Matthew.marks@lls.org) for details.
First International Pediatric Cardio-Oncology Conference, October 21 and 22. Details and Registration Link.
Recordings of Recent Past Events:
United Therapeutics sponsored an open conversation with patients, parents, and an expert mental health clinician dealing with emotions, learning to be vulnerable, finding the strength to fight, figuring out how to cope together, and much more.
The NCI sponsored webinar series, Novel Chemical Approaches for Targeting Fusion Oncoproteins featured a webinar entitled “Targeted Oncoprotein Degradation for the Treatment of Pediatric Cancers.” It was delivered by Dr. Zoran Rankovic from St. Jude Children’s Research Hospital. The recording of this webinar is now available and can be accessed by the following link: Novel Chemical Approaches for Targeting Fusion Oncoproteins 9/23/2022 (vbrick.com).
The White House Office of Science and Technology Policy (OSTP) hosts a forum in recognition of National Childhood Cancer Awareness Month on Friday, September 23rd. This convening brought together patients, caretakers, oncologists, and administration officials, who provides updates on progress of several key initiatives and served as an important opportunity for the community to make their voices heard. Watch the recording. NCI recently hosted a webinar offering a comprehensive update on implementation activities related to the research provisions in the Childhood Cancer STAR Act, which included updates on biospecimen collection and biobanking activities and on survivorship research and reporting activities. Watch the recording.
Take Action:
From our friends in the DIPG community: Please help us make history for children with cancer and push H. Res. 404 over the finish line. https://dipgadvocacy.org/…/2022/09/0-Sept15_22Congress.pdf
The Communication Team at the Childhood Cancer Data Initiative is hoping to identify personal stories from the patient/caregiver/survivor perspective to feature in their monthly newsletter debuting next month. Each month the CCDI progress update will include three stories of people in the childhood cancer community that either relate directly to childhood cancer data sharing or allow them to highlight a need that CCDI would help meet. Please email Vickie at president@cac2.org of you have a story or would like more information. If you or any families you know who have been impacted by pediatric brain cancer and affected by Hurricane Ian and need support, Please message Pediatric Brain Tumor Foundation, email familysupport@curethekids.org or call 445-895-9078 to speak with our Family Support Manager Jenn Kelley. Children’s Cancer Cause Advocacy updated and revised its Toolkit earlier this month and it’s now available now for digital download. This guidebook will give you the tools you need to become an informed, effective advocate for kids with cancer and childhood cancer survivors.
