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CAC2 Webinar–“Beyond the Signature: Demystifying Informed Consent in Childhood Cancer”

In CAC2's June webinar, "Beyond the Signature: Demystifying Informed Consent in Childhood Cancer," we brought together an extraordinary panel of experts, including a clinical ethicist, a pediatric oncologist, and a parent advocate, who each offered unique and deeply informed perspectives on how we can make this informed consent process more ethical, transparent, and truly family-centered. Informed consent is more than just a signature on a form.  It is a vital process that ensures families understand, trust, and feel empowered in the face of one of the hardest decisions they may ever make: enrolling their child in a clinical trial. In [...] Read more

CAC2 Webinar–“Fertility Hope for Childhood Cancer Survivors”

In CAC2's May webinar, "Fertility Hope for Childhood Cancer Survivors" our speakers explored fertility preservation and future family building options for childhood cancer patients and survivors. Dr. Leena Nahata (Nationwide Children’s Hospital) spoke first and covered a range of topics including How and when to have fertility preservation conversations Risk stratification overview Ovarian tissue cryopreservation Testicular tissue cryopreservation Egg and sperm banking Long term storage Megan Scherer (Worth the Wait) and CAC2 Member Nick Giallourakis (Elephants and Tea) followed and provided real world stories concerning helping survivors with fertility preservation and family building, the importance of providing stories of hope [...] Read more

CAC2 Webinar–“Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding”

In CAC2's April pop-up webinar, "Patient Advocacy, Non-Profit Foundations, and the Changing Landscape of Pediatric Cancer Funding," our special guest, Dr. Kimryn Rathmell, shared compelling insights on the evolving pediatric cancer landscape and the role of advocates. Dr. Rathmell recently completed her appointment as the 17th Director of the National Cancer Institute and has taken a new role as CEO of the Ohio State James Cancer Hospital and Solve Research Institute. Her presentation drew from a distinguished career of scientific excellence and compassionate leadership that spanned from her acclaimed work in kidney cancer genomics to her vision for the future [...] Read more

CAC2 Webinar–“The Role of AI from Diagnosis to Treatment for Childhood Cancer”

In CAC2's April webinar, "The Role of AI from Diagnosis to Treatment for Childhood Cancer," our speakers explored how Artificial Intelligence is being used in pediatric cancer and how to harness the full potential on behalf of patients by enhancing diagnosis, treatment planning, and patient outcomes. Dr. Resnick spoke first and articulated how Artificial Intelligence (AI) will play a transformative role in pediatric cancer research by enhancing diagnosis, treatment planning, and patient outcomes. AI is being used to analyze complex datasets, improve the speed, provide new diagnostic capabilities, accuracy, and personalize treatment strategies, thereby creating new opportunities for children with [...] Read more

CAC2 Webinar–“Fit for Filing”

In CAC2's "Fit for Filing" webinar, our speakers explored designing and conducting academic or academic industry collaborative trials that produce data suitable for regulatory filing. This presentation covered best practices and considerations for conducting trials ready to submit for regulatory approval. The panel examined multiple perspectives, including academia, industry, regulatory authorities, funding organizations, and patient advocates. The speakers emphasized the importance of early, robust, and multi-directional partnerships among academic investigators, cooperative groups, regulatory agencies, and industry, and how funding organizations can help promote these collaborations that are crucial to ensure the unmet medical needs of children with cancer remains a [...] Read more

CAC2 Webinar–Action Days: Know Before You Go

Action Days 2024 takes place February 13-14, 2024, in Washington, D.C. Childhood cancer advocates will have another opportunity to speak with members of Congress to gain support for legislation pending in both the House and Senate. To help prepare CAC2 members before we visit Capitol Hill, we hosted an information webinar with Rosie Abbott, Head of Government Relations at St. Baldrick's, and the Alliance for Childhood Cancer.  CAC2 Board Member Susannah Koontz began the webinar with a review of the legislative accomplishments for our community in 2023. Even if you can't attend, the information is helpful in understanding the issues [...] Read more

CAC2 Webinar–Make Your Voice Heard Alliance for Childhood Cancer Action Days 2023

We learned more about the Alliance for Childhood Cancer Action Days, which is returning to Washington, D.C., this year for the first time since 2019. Action Days allows you to speak with your members of Congress and their staff to advocate for important childhood cancer issues before Congress. Sharing your story will ensure the voice of kids with cancer is heard loud and clear on Capitol Hill. Click here for more information about Action Days April 24-25, 2023. Make Your Voice Heard PowerPoint Sarah Milberg Sarah Milberg is the Director of Government Relations and Advocacy for the St. Baldrick's Foundation, [...] Read more

CAC2 Webinar–Pediatric Cancer Advocacy – From Your Own Backyard

Many think of advocacy as traveling to Washington DC and speaking to their Senators and members of Congress, convincing them to pass legislation like the STAR Act. While this is an essential part of advocacy, there are many things that you can do within your state that do not involve travel or engaging politicians. Ann Ramer presented opportunities for connecting with your local Childhood Cancer Community and highlighted the available tools on the CAC2 member page to support your effort. Ann Ramer, MPH Ann is a mother of four children, two of whom developed multiple forms of cancer. She is [...] Read more

CAC2 Webinar–Not For Profit Financial Matters: A Deep Dive into the 990

January's CAC2 All-Member webinar provided an opportunity to clear up some of the confusion the IRS Form 990 can cause for many non-profit organizations. In the first half of this webinar, participants learned key information to complete the 990. The second half of the webinar answered questions from participants. Amy Altholz Amy Altholz is the Partner-In-Charge of RubinBrown’s Not-For-Profit Services Group. She is also a Partner in the Assurance Services Group. Her experience with a variety of not-for-profit clients provides her valuable insight into the industry’s best practices. While working for RubinBrown, Amy participated in the Baker Tilly International Exchange [...] Read more