Assorted News from the Last Week:
News from Members:
- CAC2 Member Richi Childhood Cancer Foundation issues a White Paper on the Richi House, a structured, community-based, educationally grounded model designed to support families affected by childhood cancer across the full continuum of diagnosis.
- CAC2 Supporting Organization OncoHeroes issues a White Paper on their vision where the childhood cancer community can actively participate in building—and potentially owning—the industry partner it has long been missing.
- Based on the conclusions of the workshop on rhabdoid tumors co-hosted by CAC2 Supporting Organization Member LifeArc, an international consortium has been formed to address the need to evaluate preclinically combinations of existing therapeutics, based on mechanism of action, so that the most effective combination could be evaluated in early phase clinical trials.
NCI announces Jack Shern, M.D., as the CCDI Scientific Director.
When thousands of New York City nurses walked off the job last month in the city’s largest strike of its kind in decades, 9-year-old Logan Coyle was a patient in the cancer unit at NewYork-Presbyterian’s children’s hospital in Manhattan. Here is more about the family’s experience.
Focus on International Childhood Cancer Day:
- Nigerian stakeholders advocate for free treatment.
- Telehealth boosts uptake of genetic testing among adult survivors of childhood cancers.
- Cooperation expands access to childhood cancer medicines and technical resources.
- Global platform on childhood cancer survival highlights striking disparities
Adult survivors of childhood cancer may be at higher risk for meningiomas.
Childhood cancer survival varies by tumor stage at diagnosis.
Upcoming Webinars, Online Opportunities, and Meetings:
CAC2 webinar, “Decoding Childhood Cancer: The Role of Tumor and Hereditary Genetic Testing in the Care of Children with Cancer and Their Families” on February 18 at noon-1:00 ET. Click here for information and to register.
Join the Childhood Cancer Data Initiative (CCDI) for a talk by Dr. Prasanna Ananth (Yale School of Medicine) on how patient-report outcomes (PROs) data can drive change across child, adolescent, and young adult (AYA) cancer care on Thursday, February 19 at 1:00 pm ET. Click here for more information and to register.
FDA Will host Rare Disease Day, a virtual public meeting, on Monday, February 23, 2026 in global observance of Rare Disease Week. The theme is “Moving Forward. Looking Ahead. An Event for Patients.” Click here for more information and to register.
In honor of Rare Disease Day, the Hepatoblastoma Resource Network is partnering with Eureka Therapeutics to host a special webinar featuring a parent and patient advocate perspective on Monday, February 23, 2026 from 1:00-1:45 ET. Click here for more information and to register.
Elevate Childhood Cancer, in partnership with the Kidney Cancer Association, will host the FIRST-ever Wilms Tumor Virtual Forum: Connecting Families and Experts on April 30, 2026. Click here for more information and to register.
11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1. Click here for more information and to register.
National Brain Tumor Society and volunteer advocates from across the country will come together in Washington, D.C., for Head to the Hill on May 3-5, 2026. Register today.
Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease. This year the meeting will be in Columbus, Ohio June 25-27. Click here for information and to register.
CAC2 Innovation Council Recommendation: Rehabilitation Practices in Pediatric Oncology
The Requester: Catherine Demers, Assistant Professor at University of Quebec in Trois-Rivières
The Type of Request: Request for Participation:
Overview of the Opportunity: The requestor invites children and adolescents affected by cancer, survivors of childhood cancer, and family members of children affected by cancer who are 16 years old and older to participate in a research project by completing an online questionnaire. The goal is to better understand their current or past rehabilitation needs related to cancer or treatments.
The Ask: Please consider disseminating this opportunity among your members and network by sharing the information below and/or the attached poster that asks them to complete a research questionnaire.
👉 Access the questionnaire here: www.uqtr.ca/shapingthefuture
⏳ Deadline to participate: March 15th, 2026
Take Action:
Do you know researchers work in drug discovery? Connect them to C-Further.
C-Further is an international paediatric cancer therapeutics consortium providing funding, expertise, and access to cutting-edge facilities to help researchers advance their discovery into a therapy that makes a real difference for children and young people with cancer.
The next expression of interest deadline is 13 March 2026.
We’d be grateful if you could share this with researchers in your network who might be interested in applying: https://bit.ly/3ZOROH9
Keep Your Organization’s Information Up to Date on the Childhood Cancer Hub! Help families and professionals find accurate, up-to-date information about your organization’s services by reviewing and updating your listing on the Childhood Cancer Hub. Keeping your information current ensures families can easily connect with you and that your programs and resources are represented clearly. Here’s how to get started:
- Log in to your Anddit account.
- From your dashboard, navigate to your organization’s profile.
- Review your current information, make any necessary updates, and click Save and Publish when finished.
- If a representative from your organization hasn’t claimed its listing yet, search for your organization’s name and click the “Claim this Page” button.
Need help or run into a question? Reach out to Bethany at Blieberman@cac2.org—she’s happy to assist you!
The American Association for Cancer Research (AACR) is pleased to invite patient advocacy organizations working within the cancer community to exhibit in the Advocacy Partners Pavilion at the AACR Annual Meeting 2026 in San Diego, CA (April 17-22, 2026). Due to overwhelming interest from the advocacy community, AACR has opened additional booths, but availability remains limited. There is no fee to exhibit in the Advocacy Partners Pavilion. Accepted exhibitors will receive two (2) complimentary all-access passes to the conference, on-demand recordings, use of the Advocate Lounge, and five (5) complimentary exhibitor badges. Exhibitors are accepted on a first-come, first-served basis and only a few spaces remain.
The ASCO-Sponsored Patient Advocacy Booth provides an opportunity for not-for-profit patient advocacy organizations to promote their programs, services, and resources to the professional oncology community. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Learn more.
The Conquer Cancer® Patient Advocate Award Program provides a limited number of awards for patient advocates to attend the ASCO Annual Meeting to learn of important advances in their areas of interest. Awards help cover travel, hotel, and registration expenses and are based primarily on financial need, advocacy experience, and current advocacy activities and involvement. The application period opens Monday, March 9 at 10:00 AM (ET) and closes Monday, March 16 at 5:00 PM (ET).
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