Assorted News from the Last Week:

NYTimes essay: “For families facing a deadly brain cancer, scientific progress can’t come soon enough” (ungated!) 

Families face lasting financial burdens after pediatric cancer, underscoring the need for paid leave, survivorship resources, and financial navigation.

As more cases of rare cancer in children from Ladera Ranch, California are reported, parents say ‘This is not random’

Area-based marginalization and incidence of childhood cancer

Predictors of resilience among parents of children with cancer

Vitamin D status in pediatric oncology patients in Lebanon: A comparison with non-oncology controls in a case-control study

Significant disparities exist in the availability and funding of CAR-T therapy for pediatric patients with B-ALL across Europe, highlighting the need for a standardized regional referral framework.

Upcoming Webinars, Online Opportunities, and Meetings:

  Registration Now Open for the CAC2 Summit in Miami on July 22-24! https://invite.bublup.com/QvcRaOOFd78s

The Brainstorm Summit on September 16-18 brings together parents, families, clinicians, researchers, government officials, and advocates in a supportive environment where everyone “just gets it.”  Click for more information and to register.

The 58th Annual Congress of the International Society of Paediatric Oncology (SIOP 2026) September 15-18 in San Antonio, Texas & Online.  For information and to register.

CCDI Symposium on September 17-18, hosted by the National Cancer Institute, has opened registration.  Click for more information and to register. 

15th GOLDEN TOAST 2026, September 17 at 6:00 ET.  Click for more information.

CureFest registration now open!  September 18-20.  Click for more information and to register.

Take Action:

Please complete the CAC2 PAIR for Pediatric Cancer survey to help us build a durable set of guiding principles — the “rules of engagement” — for how the pediatric cancer advocacy community works with industry. The principles the community prioritizes most will become our guiding principles, reviewed periodically as the field evolves.  Survey Link.

On behalf of CCI Europe, childhood cancer survivors (with a cancer diagnosis before or until 18 years of age)are invited to complete a survey being conducted as part of the PhD project “SurNet: Addressing the Psychosocial Needs of Survivors of Pediatric Cancer” at Iscte – Instituto Universitário de Lisboa.  Please submit responses before July 31.