Assorted News from the Last Week:

Race and ethnicity and overall survival in pediatric acute myeloid leukemia

Current perspectives on molecular pathogenesis, surveillance strategies, clinical management and pediatric considerations for Li-Fraumeni Syndrome.

Personalized T-cell therapy eliminates detectable metastatic kidney tumor in adolescent after multiple relapses.

A focus on the relationship between family engagement in consistent rules and routines during early pediatric cancer treatment and child emotional and behavioral health outcomes.

Grandparents: the quiet heroes when childhood cancer strikes

Genomic newborn screening could identify some children at risk for early cancers.

MBNL1 identified as a potential cancer drug target for a type of childhood leukemia.

Upcoming Webinars, Online Opportunities, and Meetings:

CAC2 free webinar:  “Trauma-Informed Pain Care During Pediatric Oncology Treatment: Building the Toolbox and Shaping Future Research” on Thursday, August 20 at 12:00 PM ET.  Click here to register.

NCI Office of Data Sharing will present “Patient Permissioning and Authorities Needed to Connect the CCDI Ecosystem Across Networks and Platforms” on  Monday, Aug 24 from 11:30 a.m.–1:00 p.m. ET .  Click here for information and to register. 

The Brainstorm Summit on September 16-18 brings together parents, families, clinicians, researchers, government officials, and advocates in a supportive environment where everyone “just gets it.”  Click for more information and to register.

The 58th Annual Congress of the International Society of Paediatric Oncology (SIOP 2026) September 15-18 in San Antonio, Texas & Online.  For information and to register.

17th Annual Childhood Cancer Summit, hosted by Congressman Michael McCaul and the Congressional Childhood Cancer Caucus, on Thursday, September 17, 2026 at 9:30am ET on Capitol Hill. Room to be announced.

Registration is open for the Kids First Fall Public Webinar,  Strands of Discovery: Connecting Science, Families, and the Future on September 17th from noon to 1 p.m. ET.  Click for more information.

15th GOLDEN TOAST 2026, September 17 at 6:00 ET.  Click for more information.

CCDI Symposium on September 18, hosted by the National Cancer Institute, has opened registration.  Click for more information and to register. 

CureFest registration now open!  September 18-20.  Click for more information and to register.

USA Health Childhood Cancer Reunion 2026, September 27.  Click here for details.

Recent Recordings:

Maurie Markman’s perspective “Cured as Children, At Risk as Adults? Long-Term Outcomes After Childhood Cancer“

Take Action:

Please complete the CAC2 PAIR for Pediatric Cancer survey to help us build a durable set of guiding principles — the “rules of engagement” — for how the pediatric cancer advocacy community works with industry. The principles the community prioritizes most will become our guiding principles, reviewed periodically as the field evolves.  Survey Link.