Assorted News from the Last Week:

Diagnosis. Relapse. Clinical trial. Immunotherapy. Remission. Those words are all true. But they are not Emily Whitehead’s whole story.

CAC2 Members Dena Sherwood (Arms Wide Open Childhood Cancer Foundation) and Vickie Buenger (Individual) and others articulate consensus recommendations for the neuroblastoma journey that sets a new baseline for compassionate, family-centered pediatric oncology care.

Few young adults receive palliative care as part of advanced cancer treatment.

Pivotal Phase III clinical trial (ARTEMIS-011) results:  Hansoh Pharmaceutical Group Co., Ltd. announced that risvutatug rezetecan (Ris-Rez/HS-20093), the B7-H3 directed antibody-drug conjugate (ADC), met the primary endpoint of progression-free survival (PFS) as assessed by the Independent Review Committee (IRC) in the  in patients with osteosarcoma who had progressed or relapsed after receiving at least two prior lines of systemic therapy.

Two leukemia-specific studies:

• Screening of cognitive symptoms during treatment for childhood leukemia predicts post-treatment cognitive functioning and provides preliminary evidence for use of the PROMIS parent proxy cognitive function questionnaire as a screener for cognitive difficulties.
• Adult childhood cancer survivors (CCS) of acute lymphoblastic leukemia (ALL), acute myeloid leukemia (AML) and non-Hodgkin lymphoma (NHL) frequently report mental distress, fatigue and executive function (EF) impairment.

In this cross-sectional study of pediatric oncology families from historically marginalized groups and clinicians, clinician- and parent-perceived barriers identified opportunities to increase equitable trial participation.

St. Jude Children’s Research Hospital provided details on the $200 million WHO/UNICEF Global Platform for Access to Childhood Cancer Medicines, targeting drug delivery to 120,000 children across lower-resource countries.

Targeting childhood cancer with new genomics-led programme.

Upcoming Webinars, Online Opportunities, and Meetings:

The Brainstorm Summit on September 16-18 brings together parents, families, clinicians, researchers, government officials, and advocates in a supportive environment where everyone “just gets it.”  Click for more information and to register.

The 58th Annual Congress of the International Society of Paediatric Oncology (SIOP 2026) September 15-18 in San Antonio, Texas & Online.  For information and to register.

Registration is open for the Kids First Fall Public Webinar,  Strands of Discovery: Connecting Science, Families, and the Future on September 17th from noon to 1 p.m. ET.  Click for more information.

15th GOLDEN TOAST 2026, September 17 at 6:00 ET.  Click for more information.

CCDI Symposium on September 18, hosted by the National Cancer Institute, has opened registration.  Click for more information and to register. 

CureFest registration now open!  September 18-20.  Click for more information and to register.

Recent Recordings:

Jimmy Donaldson (also known globally as MrBeast) latest video “I Helped 100 Kids Fight Cancer” may be one of his most meaningful, as he’s joined by LeBron James, Dr. Mike, and others to grant wishes for 100 children living with cancer.

Take Action:

Please complete the CAC2 PAIR for Pediatric Cancer survey to help us build a durable set of guiding principles — the “rules of engagement” — for how the pediatric cancer advocacy community works with industry. The principles the community prioritizes most will become our guiding principles, reviewed periodically as the field evolves.  Survey Link.

On behalf of CCI Europe, childhood cancer survivors (with a cancer diagnosis before or until 18 years of age)are invited to complete a survey being conducted as part of the PhD project “SurNet: Addressing the Psychosocial Needs of Survivors of Pediatric Cancer” at Iscte – Instituto Universitário de Lisboa.  Please submit responses before July 31.