Assorted News from the Last Week:

The FDA has granted rare pediatric disease designation and orphan drug designation to FL118 for the treatment of patients with osteosarcoma.

When financial hardship shapes childhood cancer survivorship.

Pathogenic germline variants in pediatric cancer-predisposition genes are associated with increased subsequent tumor risk, highlighting their value for counseling and surveillance.

The Lainie Jones Comprehensive Cancer Survivorship Act was reintroduced on May 14th in the House of Representatives.

In Iowa, a 5-cent tax has been placed on vapes and alternative nicotine products. The first $3 million from the tax money collected each year will go toward clinical trials, lab research and other research activities for pediatric cancer treatment.

Potential for risk reduction of chronic health conditions through lifestyle in childhood cancer survivors.

Volunteers bring games and laughter to Gaza cancer ward for children.

Blocking two cancer pathways may curb medulloblastoma relapse, preclinical study suggests.

Preclinical finding: Blocking two cancer pathways may curb medulloblastoma relapse.

Upcoming Webinars, Online Opportunities, and Meetings:

Following the cancellation of the 2025 Childhood Cancer Data Initiative (CCDI) Symposium originally scheduled for last fall, NCI will inaugurate the CCDI Virtual Symposium Series in the coming weeks. Sessions will occur across multiple days in March and April.  Click Here to Learn More and Register.

SIOP Survivorship Special Interest Group and Childhood Cancer International SurNet host “Ototoxicity: Prevention Trials and Clinical Perspectives” on June 10 at 9:00 ET.  Click here for more information and to register.

“Capital, Risk, and Strategy: Rethinking How Pediatric Cancer Drug Development is Funded to Move Therapies Forward” sponsored by CureSearch at noon ET on June 16.  Click for more information and to register.

Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  This year the meeting will be in Columbus, Ohio June 25-27.  Click here for information and to register.

  Registration Now Open for the CAC2 Summit in Miami on July 22-24! https://invite.bublup.com/QvcRaOOFd78s

15th GOLDEN TOAST 2026, September 17 at 6:00 ET.  Click for more information.

CureFest registration now open!  September 18-20.  Click for more information and to register.

Recent Recordings:

The “The Mother of All Cons,” a three-part docuseries, based on Jamie Bartlett’s hit investigative podcast for the British charity ” that the charity falsely claimed to grant magical wishes to terminally and seriously ill children, can be streamed in full on BBC iPlayer or viewed internationally on Apple TV. 

Dr. Amos Burke gives a family-friendly explanation of the GLO-BNHL platform trial.

CAC2 Member Kylie McGrane-Zarnoch (A Moment of Magic) presents a TEDx-Talk-Syracuse University: When a Person Becomes a Patient: How do we protect a person’s identity when illness tries to redefine it?

All six sessions of the Neuroblastoma Parent Symposium webinar series are now available.