CC Community News Digest (April 12-25)

Assorted news from the last week:

A recent student from the Childhood Cancer Survivorship Study that indicates that sixty‐four percent of survivors reported worrying about subsequent malignancy, that 45% reported worrying about physical problems related to cancer, and that 33% reported worrying about relapse.

This Journal of Clinical Oncology article addresses neurocognitive late effects in pediatric cancer survivors and explores five broad intervention domains:  compensatory methods, pharmacologic interventions, in-person cognitive remediation, computerized approaches, and physical activity interventions.

Treatment with an oncolytic immunovirotherapy alone or with radiation appeared safe and effective in a phase I study of children and adolescents with heavily pretreated high-grade glioma.

High levels of burnout during the COVID-19 pandemic was commonly reported by pediatric hematology/oncology (PHO) providers and staff and was found to be associated with prepandemic burnout and location of practice, according to the results of the phase 3 CLEAR study published in JCO Oncology Practice.

NCI and the American Cancer Society plan to study how to improve outcomes for pediatric and adolescent/young adult cancer survivors and bridge the transition to follow-up care.

Upcoming Webinars and Online Opportunities:

Join us for the 2021 CAC2 Annual Summit, a robust virtual meeting to unite CAC2 members and guests to advance our work for the childhood cancer community:  Thursday, June 24th noon – 5:00 pm ET and Friday, June 25th noon – 4:00 pm EDT.  Register here.  Read more about the Summit here.


The Coalition Against Childhood Cancer (CAC2) and the American Childhood Cancer Organization (ACCO) are pleased to invite you to a jointly convened online advocacy training meeting focused on State Cancer Action Plans–Primer on State Cancer Action Plans.  Such plans, mandated by the Center for Disease Control (CDC), articulate the challenges and issues posed by cancer in each state and often include goals, objectives, and strategies to help inform and guide communities in the fight against cancer.  Click the link above to register for this meeting to be held Tuesday, May 11, 2021,  7:00-8:30 pm ET.

CAC2 will host its May CAC2 All-Member webinar:  Improving Time to Diagnosis for Pediatric and Young Adult Cancer Patients on May 12 at noon ET.  The presentation will address the reasons why and solutions for detecting symptoms of cancer in children earlier in the diagnosis timeline.  Speakers will include the founders of the UK’s Head Smart Program which has effectively addressed delayed diagnosis in children’s brain tumors.

CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts).  Access this weeks podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):

  • Lorraine Tallman (Amanda’s Hope Rainbow Angels)
  • Joe McDonough (Andrew McDonough B+ Foundation

CAC2 member Janet Demeter (Jack’s Angels)  hosts Childhood Cancer Talk Radio.  Follow that link to access past episodes, or find recent interview with CAC2 member Mark Levine.

There’s still a chance to watch the virtual event ‘NCRI-ICRP: How collaboration is advancing research and clinical care in paediatric cancer’ that took place on 19/04/2021.  To watch the video on demand, click here and click on the small play button which appears next to the time of the event.  You may have to register for the event, even though it is past.