All posts tagged: Research

Guest Blog–Applications Open: 2025 HBF Inspiration Award for Early Career Investigators in Pediatric Brain Cancer

    Overview: Now in its 6th year, the Hopper-Belmont Foundation (“HBF”) Inspiration Award aims to motivate young investigators to make a difference early in their careers by providing a personal award recognizing concepts and/or projects in one of the following areas: Innovation: Recognition of an innovative idea in need of proof of concept/data prior to applying for larger grants from NIH or other funding resources Aspiration: Providing resources to begin or to further research in a designated HBF focus area This is a $5,000 award that can be used at the discretion of the winner, e.g. personal or research. […]

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CAC2 Webinar–“The Role of AI from Diagnosis to Treatment for Childhood Cancer”

In CAC2's April webinar, "The Role of AI from Diagnosis to Treatment for Childhood Cancer," our speakers explored how Artificial Intelligence is being used in pediatric cancer and how to harness the full potential on behalf of patients by enhancing diagnosis, treatment planning, and patient outcomes. Dr. Resnick spoke first and articulated how Artificial Intelligence (AI) will play a transformative role in pediatric cancer research by enhancing diagnosis, treatment planning, and patient outcomes. AI is being used to analyze complex datasets, improve the speed, provide new diagnostic capabilities, accuracy, and personalize treatment strategies, thereby creating new opportunities for children with [...] Read more

Member Blog–I Survived Leukemia Because of a Clinical Trial. Will Future Patients Be So Lucky?

By CAC2 Individual Member Robert Dilley writing about why sustained research funding is essential to progress. This essay first appeared on April 15 in MedPage Today. I don’t usually talk about my cancer diagnosis. But as a physician-scientist who survived leukemia at 18 years old and now cares for people facing their own cancer diagnoses, I feel compelled to share my story — because it speaks directly to what’s at stake in medicine today. The clinical trial that saved my life wouldn’t have existed without robust investment in biomedical research. And as debates over federal research funding continue, I think about […]

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CAC2 Webinar–“Fit for Filing”

In CAC2's "Fit for Filing" webinar, our speakers explored designing and conducting academic or academic industry collaborative trials that produce data suitable for regulatory filing. This presentation covered best practices and considerations for conducting trials ready to submit for regulatory approval. The panel examined multiple perspectives, including academia, industry, regulatory authorities, funding organizations, and patient advocates. The speakers emphasized the importance of early, robust, and multi-directional partnerships among academic investigators, cooperative groups, regulatory agencies, and industry, and how funding organizations can help promote these collaborations that are crucial to ensure the unmet medical needs of children with cancer remains a [...] Read more

CAC2 Member Blog–Thankful and Fearful

By CAC2 Individual Member Joe Baber Because of my grandson, Conor, a neuroblastoma survivor, I have met so many people in our childhood cancer community who want to improve the outcomes of children fighting cancer. We either have children in treatment for cancer or have children who are survivors or have died because of it.  We’re all thankful when there are lifesaving therapies and at the very same time, we are fearful of relapse, side effects of the drugs, chemotherapy, radiation, surgery and even death.  These contrary and parallel emotions seem to be linked in partnership throughout the childhood cancer […]

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CAC2 Webinar–Multimorbidity from Surviving Childhood Cancer: Using Data to Improve Shared Decision-Making

In our December CAC2 All-Member webinar, Mariah Forster Olson (Neuroblastoma Children's Cancer Society) represented the CAC2 Survivorship Interest Group and hosted Nickhill Bhakta, MD, MPH. Dr. Bhakta.  Dr. Bhakta discussed why the academic approach of thinking about one childhood cancer with one treatment exposure with one chronic condition is not a realistic way of solving long-term disease burden experienced by survivors.  He discussed his work and efforts to engage survivorship groups to guide relevant and meaningful improvements in decision-making between all stakeholders involved in the healthcare of the survivor. Read more

CAC2 Webinar–Liquid Biopsy for Early Cancer Detection in Patients with Cancer Predisposition Syndromes

In April's CAC2 All-Member Webinar, Dr. Brian D. Crompton (pediatric oncologist at Dana Farber/Boston Children's Hospital) and CAC2 Member Greg Harper (Living LFS) presented about the possibilities with emerging technology identifying circulating cancer cells with liquid biopsies, using Li-Fraumeni Syndrome as a case study. The presentation below described the investigation into a liquid biopsy for Li-Fraumeni Syndrome patients and the EDISYN consortium and how nonprofits partnering with medical research centers to help empower patients and families. Read more

CAC2 Webinar–20 Years of Neuroblastoma Research Progress

Have you wondered what has driven the progress in treating relapsed and refectory neuroblastoma patients?  If so, you may be interested in watching our November All-Member Webinar.  CAC2 Member Gavin Lindberg (EVAN Foundation) hosted a speaker program that included Drs. Kate Matthay, Judy Villablanca, and Steve DuBois speaking on:  20 Years of Neuroblastoma Research Progress. These leaders of the New Approaches to Neuroblastoma Therapy (NANT) consortium informed the audience about the progress and challenges associated with developing new strategies for refractory and relapsed neuroblastoma patients. We also learned about the history of this 20 year-old, multi-institution network, their collaborations with the Children’s [...] Read more

CAC2 Webinar–Pediatric Cancer Data Commons: A Story of Impact and Promise

Have you heard of the ways in which data science is advancing pediatric cancer research?  You may be interested in watching our October All-Member Webinar. CAC2 Member Mariah Forster Olson (Neuroblastoma Cancer research Foundation) introduced Dr. Sam Volchenboum, who spoke about his work leading the Pediatric Cancer Data Commons at the University of Chicago Medicine.  During the presentation Volchenboum highlighted the ways in which data science is advancing pediatric cancer research and discussed how this work can be influential for cancer survivors.  He was gracious enough to answer the many questions posed by our members. Dr. Volchenboum graciously allowed us [...] Read more

International Society of Pediatric Oncology (SIOP) Moves Congress Online

On behalf of the International Society of Paediatric Oncology (SIOP), please note that SIOP 2020 will take place as a virtual congress on the same dates: October 14-17, 2020.  Additionally, Late-Breaking Abstract Submission is open until August 26, allowing everyone to share their research from wherever they are based.   SIOP 2020 Virtual Congress October 14-17, 2020 www.siop-congress.org   In light of the continuing uncertainty about the evolution of the COVID-19 pandemic, we have decided to transform SIOP 2020 into a virtual congress, taking place on the same dates: October 14-17, 2020. With updated registration rates starting from EUR 25, […]

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