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Guest Blog–Virtual Day of Action: Join Together on September 9

August 28, 2020
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By Guest Blogger Sarah Milberg, Co-Chair of the Alliance for Childhood Cancer and Director of Government Relations and Advocacy for the St. Baldrick’s Foundation For nearly 10 years, childhood cancer advocates from around the country have come to Washington, D.C. to participate in the Childhood Cancer Action Days.  Action Days brings our community together to advocate for important childhood cancer issues currently before Congress.  As a result of our advocacy, we have seen many important childhood cancer policies, like the Childhood Cancer STAR Act, become law.  Due to the COVID-19 pandemic, our plans for Action Days had to change this [...] Read more

CC Community News Digest (week of August 17-23)

August 23, 2020
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Assorted news from the last week: CAC2 urges members to support efforts to help children’s hospitals in Beirut in the aftermath of the deadly August 4 explosion.  You can read more about the explosions effect on pediatric cancer patients from the New York Times American Association for Cancer Research will hold virtual Rally for Medical Research Event on September 17 Researchers to study chemo brain in children with ALL Childhood cancer survivors with severe hearing loss:  significantly increased risk for neurocognitive deficits  independent of what type of therapy they receive THON dance marathon goes virtual RACE for Children Act implemented this week

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Rally for Medical Research, 2020

August 23, 2020
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Rally for Medical Research, 2020, an annual AACR advocacy event, will take place as a completely virtual event! Schedule of Events Thursday, September 10 1:00 pm – 2:00 pm EDT Virtual Training for all Rally Hill Day Participants Wednesday, September 16 5:30 pm – 6:30 pm EDT Virtual Reception to Celebrate Medical Research Thursday, September 17 9:30 am – 5:30 pm EDT Rally for Medical Research Virtual Hill Day Meetings with House and Senate offices will take place via phone/video conference. Participants in times zones other than EDT will have their meetings begin at 9:30 am in their local time [...] Read more

CC Community News Digest (week of August 10-16)

August 16, 2020
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Assorted news links from the last week: INCB, WHO and UNODC Statement on Access to Internationally Controlled Medicines during COVID-19 Pandemic FDA Issues Complete Response Letter for Pedmark  An important step forward for mitigating the risk of life-long hearing loss caused by cisplatin AML Survivors at risk for psychosocial impairment Another study from the Childhood Cancer Survivor Study Beirut blast disrupts cancer care for children NPR reports on the wide range of damage from the explosion in Beirut More news about DIPG:  Discoveries point to a new potential treatment approach For childhood cancer survivors, exercise intolerance predicts a range of other health [...] Read more

CC Community News Digest (week of August 3-9)

August 9, 2020
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Assorted news links from the last week: Study Offers Insights on Health Problems among AYA Cancer Survivors Medical trial aims to identify those at risk of heart damage following cancer treatment Australian researchers taking a very broad look at the effect of cancer treatment on heart health. Racial Disparities in Pediatric Cancer Treatment: Black Children Less Likely to Receive Proton Radiotherapy, Forbes US FDA Grants Rare Pediatric Disease Designation (RPDD) to Paxalisib for DIPG, a big win for the Creating Hope Act (which needs to be permanently reauthorized by the end of September) Risk-Stratified Therapy Reduces Late Morbidity, Mortality in Pediatric [...] Read more

International Society of Pediatric Oncology (SIOP) Moves Congress Online

August 3, 2020
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On behalf of the International Society of Paediatric Oncology (SIOP), please note that SIOP 2020 will take place as a virtual congress on the same dates: October 14-17, 2020.  Additionally, Late-Breaking Abstract Submission is open until August 26, allowing everyone to share their research from wherever they are based.   SIOP 2020 Virtual Congress October 14-17, 2020 www.siop-congress.org   In light of the continuing uncertainty about the evolution of the COVID-19 pandemic, we have decided to transform SIOP 2020 into a virtual congress, taking place on the same dates: October 14-17, 2020. With updated registration rates starting from EUR 25, […]

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Community News: Update on Federal Childhood Cancer Appropriations Process

July 15, 2020
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Update from our colleagues at the Alliance for Childhood Cancer (July 13, 2020): The House Appropriations Committee agreed to fully fund the Childhood Cancer STAR Act and the Childhood Cancer Data Initiative again this year. Notably, the Senate has historically championed our cause for STAR funding, so this development in the House shows an even stronger commitment from Congress for our research priorities. This step is important to our requests being included in the final appropriations package when Congress considers the next budget. Here are some key sections related to childhood cancer:   STAR Act – The Committee includes no [...] Read more

FDA Approves Gemtuzumab Ozogamicin for CD33-Positive AML in Pediatric Patients

June 16, 2020
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On June 16, 2020, the Food and Drug Administration extended the indication of gemtuzumab ozogamicin (MYLOTARGTM, Wyeth Pharmaceuticals LLC) for newly-diagnosed CD33-positive acute myeloid leukemia (AML) to include pediatric patients 1 month and older.   Read More Here On June 16, 2020, the Food and Drug Administration granted accelerated approval to pembrolizumab (KEYTRUDA®, Merck & Co., Inc.) for the treatment of adult and pediatric patients with unresectable or metastatic tumor mutational burden-high (TMB H) [≥10 mutations/megabase (mut/Mb)] solid tumors, as determined by an FDA-approved test, that have progressed following prior treatment and who have no satisfactory alternative treatment options. Read [...] Read more

AACR Sponsored Listening Session with FDA

May 27, 2020
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The American Association for Cancer Research (AACR) and the U.S. Food and Drug Administration (FDA) recorded a listening session on May 27, 2020 for patient advocates to learn more about cancer clinical trials during COVID-19.  The session is about 45 minutes, with the pediatric questions at about minute 25.5, minute 37, and minute 41.   FDA Listening Session:  Oncology and Covid-19

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Day One Biopharmaceuticals

May 21, 2020
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Day One Biopharmaceutical, a start-up biotech company founded with a focus on developing therapies for children with cancer through drug repurposing announced its debut in the market last week.  Its first agent, DAY101, licensed from Takeda Pharmaceuticals, is a targeted treatment for children with low grade glioma, a type of brain cancer. DAY101 is a Phase 2-ready RAF inhibitor that also shows strong potential for other pediatric and adult indications. The company is co-founded by Chief Medical Officer Dr. Sam Blackman (who offered our May webinar) and Acting CEO Julie Grant from Canaan Partners.   You can read more here.   Please look for a […]

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