Assorted News from the Last Week:
Sub-Saharan Africa is facing a childhood cancer crisis. Annually, nearly 90% of the more than 100 000 children who develop cancer in sub-Saharan Africa die.
The immunomodulatory agent lenalidomide (Revlimid) appeared clinically active and tolerable in pilocytic astrocytomas and optic pathway gliomas in a cohort of pediatric patients who progressed following initial therapy, according to findings from a phase 2 trial (NCT01553149) published in the Journal of Clinical Oncology.
The NCI MyPART team and their collaborators have published two papers in the journal, Pediatric Blood and Cancer.
- One paper, entitled “NCI intramural program approach to rare tumors: Natural history study of rare solid tumors in children and adults: A longitudinal, comprehensive data and biospecimen collection protocol,” provides a deep dive into the aims of MyPART and the Natural History Study of Solid Tumors protocol. The paper also emphasizes the importance of collaboration across the rare tumor community to make progress.
- The second paper, “The NIH pediatric/young adult chordoma clinic and natural history study: Making advances in a very rare tumor,” highlights recent findings from the MyPART Pediatric Chordoma Clinic, including clinical presentation, pathology, data collected throughout the clinic, and treatment recommendations offered to patients. The paper concludes that the clinic model, which includes a multidisciplinary care team, is an effective way to better understand pediatric chordoma. The paper also outlines the unmet needs of this rare patient population and provides a recent review of the literature on pediatric chordoma.
Upcoming Webinars, Online Opportunities, and Meetings:
Rocky Mountain Vintage Racing is pleased to announce a 2-year festival series culminating in 2023 with the FV 60th anniversary on July 28-30. RMVR’s Race Against Kids’ Cancer (RAKC), will be at High Plains Raceway where these wonderful cars of all years and vintages are invited to gather to celebrate this class. Click for more information about Vintage Car Races for Fundraising.Triage Cancer Webinar: Engaging in Self-Advocacy. Learn practical tips for collecting medical records, talking with health care teams, navigating work and cancer, applying for benefits, filing appeals, identifying inaccurate online information, and more. July 26 1:00 ET. Learn more and register.
Zoefia Alexandria Green Heart Gala, beautiful night of elegance and celebration to raise funds and awareness for Childhood Cancer/ Brain Cancer, September 15 at 7:00 pm ET. Learn more and register.
Registration for CureFest 2023 is now open! Register today at: www.curefestusa.org
Join top scientific experts, clinicians, researchers, NCI, childhood cancer foundations and advocates, agency officials, and many more for the Inaugural Childhood Cancer Prevention Symposium. This ground breaking meeting will take place at Children’s National Research & Innovation Campus in Washington, DC on October 25-26th, 2023. (Registration and meeting details forthcoming shortly).
Recordings of Recent Past Events:
CCDI be demonstrated how to use the CCDI Hub and CCDI Childhood Cancer Data Catalog. View the slides from the presentation. CAC2 member Mark Levine hosts a podcast called, “Help and Hope Happen Here” (available on Apple Podcasts, Spotify, and Google Podcasts). Access recent podcasts with CAC2 Members (and visit Help and Hope Happen Here for interviews with other CAC2 members and thought leaders from around the community):- Ann Samsury (Rally Foundation)
