Upcoming Webinars, Online Opportunities, and Meetings:
Rocky Mountain Vintage Racing is pleased to announce a 2-year festival series culminating in 2023 with the FV 60th anniversary on July 28-30. RMVR’s Race Against Kids’ Cancer (RAKC), will be at High Plains Raceway where these wonderful cars of
all years and vintages are invited to gather to celebrate this class.
Click for more information about Vintage Car Races for Fundraising.
Triage Cancer Webinar: Engaging in Self-Advocacy. Learn practical tips for collecting medical records, talking with health care teams, navigating work and cancer, applying for benefits, filing appeals, identifying inaccurate online information, and more. July 26 1:00 ET. Learn more and register.
Rein in Sarcoma Party in the Park on Monday, July 31 from 5:00 - 8:00 PM. The “party” provides an opportunity to learn more about sarcoma cancer research, patient support, and education, as well as enjoy children’s activities, entertainment, free carousel rides, silent auction and much more. Learn more and register.
Zoefia Alexandria Green Heart Gala, beautiful night of elegance and celebration to raise funds and awareness for Childhood Cancer/ Brain Cancer, September 15 at 7:00 pm ET. Learn more and register.
Join top scientific experts, clinicians, researchers, NCI, childhood cancer foundations and advocates, agency officials, and many more for the
Inaugural Childhood Cancer Prevention Symposium. This ground breaking meeting will take place at Children’s National Research & Innovation Campus in Washington, DC on October 25-26th, 2023. (Registration and meeting details forthcoming shortly).
Recordings of Recent Past Events:
Friend of CAC2 Art Caplan reviews a tough decision from his ethics caseload:
A Teenage Girl Refuses More Cancer Treatment; Her Father Disagrees. Childhood Cancer International hosted a pair of webinars to celebrate Survivors’ Month. Survivors around the world share the label but not necessarily the experience:
Take Action:
Zach’s Bridge is looking for bereaved parents and caregivers to complete a survey to help families facing advanced pediatric cancer. The survey takes less than 5 minutes and will help improve the services that Zach’s Bridge Peers provide. Please share with your organizations and bereaved families you know.
Take the survey Fennec Pharmaceuticals announced its HELPS™Advocacy Grant Program, available to nonprofits with a focus on childhood cancer and the lifelong impact of treatment. The Fennec HELPS grant supports 501(c)3s who educate about childhood cancer. Awards will range from $1,000 to $100. For information on the FENNEC HELPS™ Advocacy Program – and to apply – visit: https://form.jotform.com/231426741678058. The application deadline is July 31st. Funds must be used by Dec 31st, 2023. Pediatric Cancer legislation needs your support.
Learn more about how to support the Gabriella Miller Kids First Research Act 2.0, the Sawyer Finn ACT, Comprehensive Cancer Survivor Act, Accelerating Kids’ Access to Care Act,and the Give Kids a Chance Act.
The FDA and CTTI
announced the call for applications for new members of the
Patient Engagement Collaborative(PEC). The PEC is an ongoing, shared forum in which the patient community (PEC members), FDA, and CTTI discuss a variety of topics such as improving communication, education, and patient engagement related to medical product regulation. This announcement is open to receive a maximum of 75 applications. Applications will be accepted until 11:59 p.m. Eastern Time on August 14, 2023 or until 75 complete applications are received, whichever happens first. Interested candidates are encouraged to
apply early.
