CAC2 Childhood Cancer Community News Digest (September 29-October 5)

Assorted News from the Last Week:

Following an Executive Order by President Trump, the U.S. Department of Health and Human Services announced a doubling of funding for its Childhood Cancer Data Initiative (CCDI).

The New York Times addresses the question: “Why Are More Young People Getting Cancer?” in this free access article.

NCI released its FY 2027 Annual Plan and Professional Judgment Budget.

Cardiotoxic gene marker identified in childhood cancer survivors.

FDA grants Orphan Drug Designation to AMXT 1501 with DFMO in neuroblastoma.

Glioblastomas affect much more than just the brain.

Upcoming Webinars, Online Opportunities, and Meetings:

The Science of Childhood Cancer is an interactive, weekly lecture series designed to engage the scientific community on key questions in pediatric cancer research. The Fall 2025 lecture season will run August 14 through November 20. Click here for more information and to register.

Brainstorm Summit Fly-In: here bold ideas ignite, friendships deepen, and hope resonates. October 11 – 14 2025. Click here for more information and to register.

Eureka Therapeutics hosts a special webinar on Hepatoblastoma: After Hepatoblastoma- A Parent and Nurse Perspective, featuring Julie Chessell, RN: nurse, parent advocate, and volunteer with the Hepatoblastoma Resource Network. Click here for more information and to register.

Action Days 2026 will be held in Washington, D.C. from February 24-25, 2026. Registration is open! Action Days registration will close on Friday, January 30, or when we reach 225 participants. Click here for more information and to register.

Take Action

Researcher at Leeds Beckett University would like to speak to you and/or your son about a new resource they have developed. The resource is designed to raise awareness of the ways in which cancer treatment can affect fertility and to help young men think about preserving their fertility. Click here for complete information about how to participate.

 


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