Assorted News from the Last Week:
CAC2 Board Member Aubrey Reichard-Eline of WITH Grace Initiatives pens powerful Op Ed: “Turning pain into purpose: how service and story are changing childhood cancer in New Jersey“
CAC2 Supporting Organization Focused Ultrasound reports early clinical trial results for pediatric brain tumor patients.
CAC2 Member Beat Childhood Cancer’s Research Consortium expands to Europe.
The Children’s Oncology Group AEWS2431 protocol for metastatic Ewing sarcoma is officially open.
A political agreement on the major reform of EU pharmaceutical rules was reached with the EU Commission, the EU Council and the EU parliament. The reform will allow important new opportunities to improve the process of studying medicines in children, including formalizing a new process for iterative pediatric investigation plans (PIPs).
Combination therapy shows potential to treat pediatric brain cancer ATRT.
Japan to conduct first economic survey of people with childhood cancer experience.
Global childhood cancer survival in low- and middle-income countries.
BBC reports on children with cancer, scammed out of millions fundraised for their treatment
Church leaders urge Israel to allow child cancer patients to leave Gaza for treatment.
Upcoming Webinars, Online Opportunities, and Meetings:
NCI will host a free public webinar at 1:00 ET on January 16: AI-Driven Multimodal Data Integration & Analysis to Improve Pediatric Cancer Diagnosis. Click here for information and to register.
CAC2, in partnership with Courageous Parents Network (CPN), will host a webinar at noon ET on January 21, “Parenting Adolescents and Young Adults with Cancer: Navigating Your Unique Journey.” Click here for information and to register.
11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1. Click here for more information and to register.
Recordings of Past Events:
CAC2 Webinar: Closing the Gaps: Federal Legislation and State Leads for Childhood Cancer Advocacy.
Take Action:
Urgent! Two bills for children with cancer need your support! It is important to advocate about both Give Kids A Chance Act and AKACA together, known together as the Childhood Cancer Package.
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Comprehensive one pager on each bills
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Advocacy alert language with talking points
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Instructions on how to collect and send hand-written letters to Congress
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Guide on how to place an Op-Ed
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Talking points for meetings with congressional staff
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Phone script and instructions to organize a call alert
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Unbranded social media images with template captions that can be customized with each organization’s logo
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