CAC2 Childhood Cancer Community News Digest (December 22-28)

Assorted News from the Last Week:

Study reveals the profound psychological burden borne not only by childhood cancer survivors but also by their parents, including PTSD, depression, and anxiety.

After surviving a rare and deadly childhood cancer, a Bury schoolgirl is celebrating becoming a world champion on the international martial arts stage.

Lifetime risk of solid tumors and leukemia in Down Syndrome: a population-based Swedish matched cohort study

WHO Global Initiative for Childhood Cancer (GICC) targets a 5-year overall survival of at least 60% globally by 2030 while reducing suffering, through a systems-wide approach known as CureAll.

New Health-Related Quality of Life questionnaire for adolescents and young adults provides a reliable, valid tool for use in both clinical trials and practice.

The HAG regimen is an effective and promising treatment for pediatric patients with acute myeloid leukemia (AML).

Upcoming Webinars, Online Opportunities, and Meetings:

NCI will host a free public webinar at 1:00 ET on January 16: AI-Driven Multimodal Data Integration & Analysis to Improve Pediatric Cancer Diagnosis.  Click here for information and to register.

CAC2, in partnership with Courageous Parents Network (CPN), will host a webinar at noon ET on January 21, “Parenting Adolescents and Young Adults with Cancer: Navigating Your Unique Journey.” Click here for information and to register.

Action Days 2026 will be held in Washington, D.C. from February 24-25, 2026. Registration is open! Action Days registration will close on Friday, January 30, or when we reach 225 participants. Click here for more information and to register.

 

11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1.  Click here for more information and to register.

Recordings of Past Events:

CAC2 Webinar:  Closing the Gaps: Federal Legislation and State Leads for Childhood Cancer Advocacy.

Take Action:

Two bills for children with cancer need your support!  It is important to advocate about both Give Kids A Chance Act and AKACA together, known together as the Childhood Cancer Package. 

Here is the link to the Childhood Cancer Package toolkit:
 
 
The link includes 
  • Comprehensive one pager on each bills
  • Advocacy alert language with talking points
  • Instructions on how to collect and send hand-written letters to Congress 
  • Guide on how to place an Op-Ed
  • Talking points for meetings with congressional staff
  • Phone script and instructions to organize a call alert
  • Unbranded social media images with template captions that can be customized with each organization’s logo


SUBSCRIBE

Sign up to receive a copy of CAC2’s free childhood cancer news digest in your inbox each week.

This field is for validation purposes and should be left unchanged.
Name(Required)
Email(Required)

Picture of Vickie Buenger

Vickie Buenger

Leave a Reply

Sign up for our Newsletter

We protect your privacy and won’t share your information.