Assorted News from the Last Week:
CAC2 Supporting Member Focused Ultrasound Foundation reports that researchers in Taiwan completed an early-stage trial showing focused ultrasound–mediated blood-brain barrier opening plus chemotherapy is safe in patients with GBM.
A unique cancer risk profile in Down Syndrome: Higher leukemia risk in childhood.
Informal caregivers’ feeding experiences in pediatric cancer.
Council claims that children born in ‘Toxic Town’ not more at risk of cancer.
Long-term adverse effects of modern Wilms tumour therapies: implications for monitoring
Upcoming Webinars, Online Opportunities, and Meetings:
CAC2 webinar, “Decoding Childhood Cancer: The Role of Tumor and Hereditary Genetic Testing in the Care of Children with Cancer and Their Families” on February 18 at noon-1:00 ET. Click here for information and to register.
Join the Childhood Cancer Data Initiative (CCDI) for a talk by Dr. Prasanna Ananth (Yale School of Medicine) on how patient-report outcomes (PROs) data can drive change across child, adolescent, and young adult (AYA) cancer care on Thursday, February 19 at 1:00 pm ET. Click here for more information and to register.
FDA Will host Rare Disease Day, a virtual public meeting, on Monday, February 23, 2026 in global observance of Rare Disease Week. The theme is “Moving Forward. Looking Ahead. An Event for Patients.” Click here for more information and to register.
11th International Nursing Conference on Child and Adolescent Cancer Survivorship in Philadelphia on April 30 and May 1. Click here for more information and to register.
National Brain Tumor Society and volunteer advocates from across the country will come together in Washington, D.C., for Head to the Hill on May 3-5, 2026. Register today.
Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease. This year the meeting will be in Columbus, Ohio June 25-27. Click here for information and to register.
Past Recordings:
CAC2, in partnership with Courageous Parents Network (CPN), hosted the webinar Parenting Adolescents and Young Adults with Cancer: Navigating Your Unique Journey.
Take Action:
Keep Your Organization’s Information Up to Date on the Childhood Cancer Hub! Help families and professionals find accurate, up-to-date information about your organization’s services by reviewing and updating your listing on the Childhood Cancer Hub. Keeping your information current ensures families can easily connect with you and that your programs and resources are represented clearly. Here’s how to get started:
- Log in to your Anddit account.
- From your dashboard, navigate to your organization’s profile.
- Review your current information, make any necessary updates, and click Save and Publish when finished.
- If a representative from your organization hasn’t claimed its listing yet, search for your organization’s name and click the “Claim this Page” button.
Need help or run into a question? Reach out to Bethany at Blieberman@cac2.org—she’s happy to assist you!
The American Association for Cancer Research (AACR) is pleased to invite patient advocacy organizations working within the cancer community to exhibit in the Advocacy Partners Pavilion at the AACR Annual Meeting 2026 in San Diego, CA (April 17-22, 2026). Due to overwhelming interest from the advocacy community, AACR has opened additional booths, but availability remains limited. There is no fee to exhibit in the Advocacy Partners Pavilion. Accepted exhibitors will receive two (2) complimentary all-access passes to the conference, on-demand recordings, use of the Advocate Lounge, and five (5) complimentary exhibitor badges. Exhibitors are accepted on a first-come, first-served basis and only a few spaces remain.
The ASCO-Sponsored Patient Advocacy Booth provides an opportunity for not-for-profit patient advocacy organizations to promote their programs, services, and resources to the professional oncology community. The booth provides a venue where participants can display materials and where meeting attendees and patient advocates can meet, interact, and exchange information. Learn more.
The Conquer Cancer® Patient Advocate Award Program provides a limited number of awards for patient advocates to attend the ASCO Annual Meeting to learn of important advances in their areas of interest. Awards help cover travel, hotel, and registration expenses and are based primarily on financial need, advocacy experience, and current advocacy activities and involvement. The application period opens Monday, March 9 at 10:00 AM (ET) and closes Monday, March 16 at 5:00 PM (ET).
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