Assorted News from the Last Week:

Childhood cancer from a parent’s point of view.

U.S. Rep. Debbie Wasserman Schultz (FL-25), Rep. Brian Fitzpatrick(PA-1), Rep. Mark DeSaulnier (CA-10), and Rep. Joe Wilson (SC-2) re-introduced the Lainie Jones Comprehensive Cancer Survivorship Act (CCSA), legislation that will address gaps in survivorship care and develop desperately needed standards to improve the overall patient-centered quality of care and navigation needs of cancer survivors and their families.

The U.S. Food and Drug Administration today announced it is soliciting input on efforts with respect to drug repurposing to help address unmet medical needs across a range of diseases and conditions. 

Harnessing the power of biomarkers for diffuse intrinsic pontine gliomas.

Testing latest models In childhood cancer.

Real-world use of thrombopoietic agents in treatment-naïve children with severe aplastic anemia: a multicenter retrospective study

Upcoming Webinars, Online Opportunities, and Meetings:

Following the cancellation of the 2025 Childhood Cancer Data Initiative (CCDI) Symposium originally scheduled for last fall, NCI will inaugurate the CCDI Virtual Symposium Series in the coming weeks. Sessions will occur across multiple days in March and April.  Click Here to Learn More and Register.

On May 19, the Ohio Department of Health will host the 5th Annual Childhood Cancer Summit (virtual).  Click here for information and to register.

Special free webinar in honor of Hepatoblastoma Awareness Day on May 20 at noon ET.  Click here for information and to register.

Webinar sponsored by TPN.health “Invisible but Impacted: The Critical Role of Supporting Siblings in Peds/AYA Oncology Care” Noon ET on May 27.  Registration link.

Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  This year the meeting will be in Columbus, Ohio June 25-27.  Click here for information and to register.

  Registration Now Open for the CAC2 Summit in Miami on July 22-24! https://invite.bublup.com/QvcRaOOFd78s

Recent Recordings:

All six sessions of the Neuroblastoma Parent Symposium webinar series are now available.