CAC2 Childhood Cancer Community News Digest (June 8-14)

Assorted News from the Last Week:

CAC2 Supporting Organization Blood Cancer United is buying remaining supplies of Luvelta and will manage a compassionate-use program to maintain patient access.

Review of 88 epidemiologic studies links pesticides to pediatric brain tumors and leukemia.

The number of prescription drug shortages in the U.S. fell by 23% last year, marking the second consecutive year of declines and the lowest level since 2017, but otherwise found troubling signs about medicines that are in short supply.

Chemo-free treatment effective in kids with newly diagnosed acute promyelocytic leukemia.

Family-centered care: The missing piece in childhood cancer.

The US FDA has granted rare pediatric disease designation (RPDD) to opaganib (ABC294640) for the treatment of neuroblastoma.

The PLK4 inhibitor RP-1664 demonstrates potent efficacy in neuroblastoma preclinical models through a dual mechanism of sensitivity.

New research uncovers how deadly childhood cancer grows, highlights potential therapies

Belgian children’s cancer charity faces prosecutor’s investigation.

Sugar-coated CAR-T cells survive longer and shrink lymphoma tumors in mice.

Upcoming Webinars, Online Opportunities, and Meetings:

Following the cancellation of the 2025 Childhood Cancer Data Initiative (CCDI) Symposium originally scheduled for last fall, NCI will inaugurate the CCDI Virtual Symposium Series in the coming weeks. Sessions will occur across multiple days in March and April.  Click Here to Learn More and Register.

“Capital, Risk, and Strategy: Rethinking How Pediatric Cancer Drug Development is Funded to Move Therapies Forward” sponsored by CureSearch at noon ET on June 16.  Click for more information and to register.

The Role of Environmental Health in Pediatric Oncology Clinical Practice at 2:00 ET on Tuesday, June 16.  Click here to register.

WHO Webinar: Scaling up the Global Platform: working together to close the childhood cancer survival gap through sustainable access to quality-assured medicines on June 24.  Click here for times and to register.

Started in 2017, the annual MIB Agents FACTOR conference brings together the leading researchers, clinicians, and surgeons, along with patient families and OsteoWarriors (survivors, patients, and siblings of OsteoWarriors and OsteoAngels) to Make It Better for those battling this disease.  This year the meeting will be in Columbus, Ohio June 25-27.  Click here for information and to register.
 
CCDI Virtual Symposium:  CAR-NKT Cell Therapy for Neuroblastoma on July 14, 2026, from 1:00–2:00 p.m. ET.  Click here to register.
 

 👉 Registration Now Open for the CAC2 Summit in Miami on July 22-24! https://invite.bublup.com/QvcRaOOFd78s

15th GOLDEN TOAST 2026, September 17 at 6:00 ET.  Click for more information.

CureFest registration now open!  September 18-20.  Click for more information and to register.

Recent Recordings:

Cannonball Kids hosted CAC2 Member Susan Weiner, who presented a webinar entitled: “How do laws, funding, and advocacy shape the future of childhood cancer research?”

The “The Mother of All Cons,” a three-part docuseries, based on Jamie Bartlett’s hit investigative podcast for the British charity ” that the charity falsely claimed to grant magical wishes to terminally and seriously ill children, can be streamed in full on BBC iPlayer or viewed internationally on Apple TV


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